Author Topic: Elvis lip  (Read 6136 times)

Brewers7

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Elvis lip
« on: October 29, 2010, 12:19:55 pm »
I have FINALLY begun to see some facial movements the past few months (now nearly 2 years post op).  My AN side upper lip has a slight snarl.  What's up with that?  Any ideas?  Just curious.  Susan
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

LisaP

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Re: Elvis lip
« Reply #1 on: October 29, 2010, 04:50:53 pm »
Hi Susan,

Wow that is great, I am not a doctor but it sounds like the nerve is regenerating.......I am also sure that you probably don't look like Elvis!!!

Best wishes,

LisaP ;D
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

nancyann

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Re: Elvis lip
« Reply #2 on: October 29, 2010, 05:29:34 pm »
Great news - I never got a snarl, or anything else,  sounds like good news to me !!  Keep snarlin' darlin' !
this is the start of something big !!
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Debbi

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Re: Elvis lip
« Reply #3 on: November 04, 2010, 07:09:17 am »
Just a quick comment on the Elvis Snarl.   I got the same thing sometime around the one year mark and it was the first sign of hyptertonic muscles (involuntary hypertonicity) - in layman's terms, a muscle spasm in my cheek.  This is something that can be worked out with facial therapy/massage.  I waited another year before seeing a facial retrainer (Jackie Diels, the wonder woman) and had to work a bit harder to loosen the muscle.  By the time I finally got off my hiney and took action, I had a fair amount of pain on that side of my face due to the muscle spasms.  Now, however, the snarl is gone and the pain is gone.  This is apparently fairly common with facial recovery.  You may want to ask your doctor when you next see him if he thinks this is hypertonicity and if so, can he refer you to someone who can help you work on it. 

Good luck!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

kawman600

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Re: Elvis lip
« Reply #4 on: December 01, 2010, 02:31:58 pm »
That is great news! Are or have you been doing any facial exercises to help it ?If not there are many you can do-they helped me tremendously.

Brewers7

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Re: Elvis lip
« Reply #5 on: December 01, 2010, 02:39:29 pm »
I am going to a facial therapist on the 13th (Jackie Diels trainee in Nashville).  Wish me luck.
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

kawman600

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Re: Elvis lip
« Reply #6 on: December 02, 2010, 06:35:41 am »
That is great,I am sure that will help,good luck !

lori67

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Re: Elvis lip
« Reply #7 on: December 02, 2010, 06:39:13 am »
Hey, look what it did for Elvis!   :D  Maybe it's something in the water?

At least something is moving so that's a good thing.  Now the trick will be to figure out how to get it to move the way you want it to, but I know Cathey will be able to help you out with that.

While you're in Nashville maybe you can stand on the corner with a guitar and make a little extra cash.  When life gives you lemons.....   ;D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.