Author Topic: Husband and wife with acoustic neuromas!  (Read 10316 times)

moe

  • Hero Member
  • *****
  • Posts: 1697
Re: Husband and wife with acoustic neuromas!
« Reply #15 on: July 02, 2010, 12:20:22 am »
Sam,
Speaking of husband and wife with acoustic neuromas,

That was an interesting post. :D Did you press the wrong post?! :D Anyway, Sorry to hear about Daisy. I know where this belongs- the  thread where Liz lost her lab.... :'(
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

pgka97

  • New Member
  • *
  • Posts: 7
Re: Husband and wife with acoustic neuromas!
« Reply #16 on: July 02, 2010, 08:49:43 am »
Hi, While we are on the track of environmental causes has anyone worked for McDonald's in the 90's with the "Qing" ovens.  I worked for McD for 30 years and personally know of 5 people with varying forms of brain tumors.  I have been one of the lucky ones with AN.
 Just curious
Paula

Sam Rush

  • Sr. Member
  • ****
  • Posts: 282
Re: Husband and wife with acoustic neuromas!
« Reply #17 on: July 06, 2010, 10:31:00 am »
Moe

That was the correct thread. Someone brought up the subject of Sam Rush's dog. re: environmental factors, and I was just giving a follow-up
1 cm AN translab, Dr. Brackmann, Dr. Schwartz, Dr Doherety HEI   11/04   Baha 7/05

annamaria

  • Jr. Member
  • **
  • Posts: 89
Re: Husband and wife with acoustic neuromas!
« Reply #18 on: July 13, 2010, 04:02:03 am »
My husband is a mathematician.

He says that while the chance is quoted as 1/100,000 PER YEAR, the lifelong probability of getting AN is 1 in 1,000 (that would be 100x1/100,000, assuming one lived 100 years); that means that if you know 1,000 people (say, at work or in your company), then 1 person would have an instance of an AN.  Now, with that, the probability that during a lifetime two people had ANs would be 1/(1000x1000), or 1 in one million.  That means that there are, statistically, about 300 couples in the U.S. that have such issue, looking at a lifetime. (Btw, my husband's company has 1,600 people and there are 2 people with brain tumors there -- it's an information company, so no environmental issues are involved.) [if you assumed a lifitime to be 80 years, you can re-run the numbers above... slightly lower probabilities]

Recent medical research (from Europe) seems to be stating that the incidence is actually higher, perhaps 5/100,000.  Then the lifelong probability of getting AN is 1 in 200.

AnnaMaria

Mickey

  • Hero Member
  • *****
  • Posts: 753
Re: Husband and wife with acoustic neuromas!
« Reply #19 on: July 13, 2010, 08:02:55 am »
 Annamaria, very interesting and nicely put! It makes sense to me. Mickey

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: Husband and wife with acoustic neuromas!
« Reply #20 on: July 13, 2010, 08:36:01 pm »
Wow AnnaMaria, your husband is brilliant!  Thanks I actually understood all of that and it made sense  :o 

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

free2be

  • Full Member
  • ***
  • Posts: 149
Re: Husband and wife with acoustic neuromas!
« Reply #21 on: July 15, 2010, 07:43:17 pm »
FWW...my doc just told me last week, that the statistics are much higher now; he said closer to 1/5000. I thought that was a lot compared to 1/100,000, but I didn't ask more about it.
 
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

CHD63

  • Hero Member
  • *****
  • Posts: 3235
  • Life is good again!!
Re: Husband and wife with acoustic neuromas!
« Reply #22 on: July 16, 2010, 07:45:59 am »
IMO part of this has to do with earlier detection of ANs now with the advanced technology in MRIs.  Many ANs are being found much earlier, before they have done extensive damage.  The stats may be changing temporarily because of that.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Brookes

  • Guest
Re: Husband and wife with acoustic neuromas!
« Reply #23 on: July 16, 2010, 03:07:46 pm »
FWW...my doc just told me last week, that the statistics are much higher now; he said closer to 1/5000. I thought that was a lot compared to 1/100,000, but I didn't ask more about it.
 

Did you forget a zero?  1 in 50,000 would be double but 1 in 5,000 - 20 times the previously understood frequency - is statistically a MASSIVE jump.  It implies 60,000 new diagnoses each year.  Yikes!  :o

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Husband and wife with acoustic neuromas!
« Reply #24 on: July 16, 2010, 04:29:25 pm »
Coincidence, environmental ??  I can tell you I've had 3 benign tumors & no one in my family has had this problem, or in my neighborhood.
However, that doesn't rule out that it can be random & also due to something environmental.  
Very interesting.  In the meantime,  I wish you all the best.
Always good thoughts,  Nancy
« Last Edit: July 16, 2010, 06:15:39 pm by nancyann »
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

satman

  • Sr. Member
  • ****
  • Posts: 411
Re: Husband and wife with acoustic neuromas!
« Reply #25 on: July 21, 2010, 07:59:59 pm »
I don't worry about my ex-husband getting an AN because I'm pretty sure he doesn't have a brain anyway!

girl you are somethin else  ;D
priceless is all i can say , priceless !
kicked my little 8cm buddy to the curb-c ya !