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Author Topic: Can't I get a @#%$ing BREAK!!!!  (Read 48434 times)

Captain Deb

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #30 on: June 18, 2010, 11:09:20 am »
Laz,
I have had an MRI and there seems to be no disc problem, just those inflamed sacroiliac joints.  I see the osteo doc on Tues and will ask about the Flector patch:

http://www.flectorpatch.com/

My neighbor uses these for a similar condition.  Feeling better today--headache gone and back pain down to a screaming 5. Head down to a 3.  Does that make my pain level an 8?

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

cin605

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #31 on: June 18, 2010, 12:51:05 pm »
Hi Deb....Gald to hear your feeling better today.
I had a question for you about gabepenton.Did you have major issues w/ it?Did it stop working suddenly?
I started it a couple weeks ago and seems to be helping w/ pain in neck and head and muscle spasms.
i have been able to stop the flexiril.I do find i am having to take an xtra lorazepam to sleep.I am getting so much energy.
i do not kno if its from the med or not having a spasing head.
Thanks Cindy
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Captain Deb

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #32 on: June 18, 2010, 01:28:21 pm »
I think you're feeling better!  Gabapentin made me really drowsy and sleepy.  I'm thinking of going back on it for both my back and my head--will talk  to the doc on Tues.

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

goinbatty

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #33 on: June 23, 2010, 08:00:38 pm »
Deb, I'm so sorry you're having so much going on.  I hope you get relief soon.  Just wanted to chime in about chiropractors.  I went to one years back, stopped for a long time but returned last year.  It's helped me greatly.  My spine is curved a bit making my right hip slightly higher than the left.  Sounds crazy but it had gotten to the point where I had trouble lifting my right leg to clear a step.  Once the chiro got my back loosened up, that right hip/leg functions much better.  The chiro might be able to help with migranes too.  A lot of people and in particular docs don't believe in chiropractics but this nurse sure does!!  Hope you get to feeling better soon. 
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

Lizard

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #34 on: June 24, 2010, 05:40:42 pm »
Deb,
I also saw a chiropractor, but its just to expensive to keep up...had a lot of relief, but you have to keep going and it started to wear on my credit card if ya know what I mean...
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Mei Mei

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #35 on: June 25, 2010, 05:56:15 pm »
Dear Deb,
I'm sorry to hear you're not feeling well.   


I posted somewhere else a few months ago about the Flector Patch.   I was using it, but ran out.   It has flexeril in it.   I also have a patch with Lidocaine in it.   THe problem is that the sticky stuff on it is no good and it keeps falling off your neck.   I wasn't getting much relief from it.   I guess because my neck is pretty bad.  I feel better from the Salonpas that you can get from Costco or the drug store and the ice pack or the heat pack that you microwave.

Nothing I am trying is working.  Not even the Neurontin.  The Imitrix stops working when you use it too long.   That's what happened to me about 15 years ago when I used to have headaches with endometriosis.  It's all so frustrating.  I took your advice and have the appointment with the anesthesiologist on July 14.   Wish you would get better and stay better.
Hugs,
Mei Mei

Add me to your FB page   Seroun Mei Mei Wang

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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Captain Deb

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #36 on: June 26, 2010, 12:21:31 pm »
I finally got a diagnosis on what's going on with my back.  I have an encapsulation tear in my left sacroiliac joint--something the docs can actually SEE!! The second doc saw it in the dye they use for needle placement during the injection procedure.  I can't believe I have been walking around with this for 13 months. He gave me some pain meds that actually work, Ativan to take when I wake up in the middle of the night with level 9 pain, a PT prescription, and an appt to get another couple joint injections, which I may not have.  I also got a prescription for the Flector Patch, which I used one night and actually slept through the night for the first time in almost a year. I'm back on Neurontin for this--was going to go back on it for the head anyhow.

The tear is probably from surgical position during my laparoscopic hysterectomy a year ago in May.  These things are caused by trauma usually and the pain started right afterwards so putting 2 and 2 together.  Maybe they dropped me!
Sounds about like my luck with surgeries!

Anyway, the doc said it would heal but it would be a long time and might bother me the rest of my life.  Just like my head apparently. Just call me Heads N Tails!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Jim Scott

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #37 on: June 26, 2010, 12:35:47 pm »
Heads and Tails Deb ~

Thanks for the update.  I'm glad to learn that the cause of your back pain has been identified and addressed so that you're finally getting some relief.  As the spouse of a lady who lives with pain 24/7, I can empathize with your situation and share your satisfaction at the pain source finally being verified by your doctor. May things continue in this positive direction.

Jim 
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mei Mei

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #38 on: June 26, 2010, 01:28:49 pm »
Dear Heads N Tails Captain Deb,
First of all I'm so glad you found a good primary care after listening to your gut and dropping the original one.  From one surgery to the next it's like what you said on another post ... a domino effect ... of woes.   It' just keeps getting worse.   I'm so glad you've found somebody that's put you on the right track.
I really feel for you and wish I could stand there in the operating room and police those guys to make sure they don't do you wrong.  The best thing is to stay away for ORs if you can.  Just stay as conservative as you can.   We've had our share of bad luck with tumors, that's for sure.  Here's to good health.  I'll drink a root beer float with you tonight!  Glad the Flector Patch and Neurontin is working for you. 
Hugs to you,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Captain Deb

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #39 on: June 26, 2010, 02:42:46 pm »
Thanks Jim and Mei mei--you guys have become like family to me!

H&T
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Mei Mei

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #40 on: June 26, 2010, 05:52:41 pm »
And you to me,  the feeling is mutual.  We're forumites. 

We take care of each other!

Hugs,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Lizard

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #41 on: June 27, 2010, 12:23:07 pm »
Quote from: Mei Mei on June 26, 2010, 05:52:41 pm
And you to me,  the feeling is mutual.  We're forumites. 

We take care of each other!

Amen sister!

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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Larry

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #42 on: June 28, 2010, 07:52:05 pm »
Captain Heads and tails parrot!

geesh, any more titles you wanna have????

At least you got a diagnosis, even though ts not great, at least pain relief can be targetted.

Thinking of ya down under.


laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
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jennifer7

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #43 on: June 29, 2010, 06:36:04 pm »
I'm so glad you know the source of your back pain and your new NP is doing something for you!!!
I hope it will heal quickly for you
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Keri

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Re: Can't I get a @#%$ing BREAK!!!!
« Reply #44 on: July 06, 2010, 07:26:47 am »
Capn Deb,
I am so sorry to read about everything you've got going on and all the pain. I hope things are goign better and getting better.
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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