Hi all. I saw Dr. Telian yesterday. He was extremely personable and upbeat. One of my concerns is that he seemed highly optimistic about the recovery period. He said just a few days in the hospital and I would be back to normal activity in 3 weeks. From what I've read on this board, and knowing that each case is different, that seems faster than what I've read people take to recover.
The other thing that concerned me was his mention of potential facial paralysis usually by accidental cutting of the facial nerve. I guess doctors are human, but this didn't give me a warm fuzzy feeling.
What surgical option did he recommend? I'll be COMPLETELY honest. I had a dr. tell me about 3 weeks and the 1st person I read on hear with tumor about my size, same surgery, same age.....was sounding good at 3 weeks. I looked at that and thought "yeah, that's me". Not! BUT after speaking with them on the phone after my surgery I found out they didn't post everything. So it wasn't as great as they made it sound. Then at 2 months things started going off for them. JUST NEVER KNOW!! I just want to say I went in TOO overly Optimistic and it wasn't my surgery that went wrong, I also have some spine & neck issues that flared due to laying on table so long, etc. Plus really thought I'd have my hearing too. Maybe not being overly optimistic is bad, buteveryone is different with the outcome....no matter WHERE you go, etc. For ex. the person I mentioned earlie HAD to go to HEI, said they were almost 99% sure they could save hearing......NOT, now SSD also. No one can guarantee anything. These tumors all lay different, can be sticky, etc.
When do you go to MEI?? I don't EVER want to sound negative here, but just letting people know there is no guarantee with any of this. I'm glad you have been on the site leasearching it.
As for facial issues, that Sally is affected by the size of the tumor and how much it is pushing on the facial nerve. I got delayed facial paralysis, but it was due to swelling. Put on a steroid and that helped.
I will PM you my phone number in case you ever want to chat.