Author Topic: Ok, I have a date for surgery.  (Read 14469 times)

Doc

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Re: Ok, I have a date for surgery.
« Reply #30 on: February 12, 2010, 11:26:08 am »
I thought of you and your surgery shortly after I woke up this morning...its marked on the calendar on the refrigerator door. I've got a headache right now, so you must be in surgery as I type this...sympathy pains I guess...thank goodness you're not giving birth, I couldn't handle those pains...say cheese!

All my best Tod...wishing you a speedy trip back to a healthy you!

Take Care!
  ;)
Doc

Always Blogging at www.wonkyhead.com
Jul 2009: Left Translab to debulk a 5cm x 5cm AN. Jan 2010: CyberKnife Radio Surgery to combat remaining AN; approximately 3cm.  MRI Jan 12: Good progress. Last MRI Jan 13: All Good! My life got much better when I received my Scleral Lens.

sues1953

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Re: Ok, I have a date for surgery.
« Reply #31 on: February 12, 2010, 02:13:16 pm »
Hi Todd

I remember reading your post here and wishing I had a definite date for my surgery. I imagine that your pretty busy right about now, or at least the Dr's are.  I'm sending.. up a special coming out prayer for Bob.  When you read this it will be all over and I hope that you are doing fine.  I know they say the first 3 days are hard but with any luck you will sleep through most of it, That's what I'm gonna do ( I hope). 

Send us a line as soon as you can, your a POSTIE now and we wanna hear all about it.

Sue
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

Mei Mei

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Re: Ok, I have a date for surgery.
« Reply #32 on: February 12, 2010, 04:58:43 pm »
It's the end of the day and yes your a Postie now and Bob is somewhere in a Path lab where he belongs.   Congratulations, Tod.  Rest, well and write to us when you can!
Sincerely,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Tod

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Re: Ok, I have a date for surgery.
« Reply #33 on: February 22, 2010, 10:57:10 am »
10n days later I am a survivor. 32hours of surgery and a  long way to workthth0ugh ahead.


thanks all,

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

epc1970

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Re: Ok, I have a date for surgery.
« Reply #34 on: February 22, 2010, 11:24:45 am »
Tod
My jaw dropped when I read that you had 32 hours of surgery!! Gets lots of rest Tod. Update us on how you are doing when you feel up to it!
Erin

Tod

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Re: Ok, I have a date for surgery.
« Reply #35 on: February 22, 2010, 11:32:25 am »
Thanks Erin. Bill Boadduss has been awarded ""Rock star" status by my familiy for his dogged pursuit of Bob and saving my life.

Best to all,

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

leapyrtwins

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Re: Ok, I have a date for surgery.
« Reply #36 on: February 22, 2010, 12:10:57 pm »
Seriously, Tod?

32 hours of surgery?

You deserve a special award for this!

Where is Steve??  He should knit you a hat.  I'd do it myself, but I can barely sew on a button  ;D

Great to hear from you.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

epc1970

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Re: Ok, I have a date for surgery.
« Reply #37 on: February 22, 2010, 12:13:05 pm »
You are so right Jan-Tod deserves a hat!
Erin

nancyann

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Re: Ok, I have a date for surgery.
« Reply #38 on: February 22, 2010, 12:40:24 pm »
OMG ! !   32 hours ??!!!!  Gotta be a new record - I can't even imagine this, how you must have felt when you (finally) came to ! !
Hope you are doing well; & as you've probly been told a zillion times:  REST, REST, eat, walk, REST, REST... recovery takes ALOT of time.
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

Mei Mei

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Re: Ok, I have a date for surgery.
« Reply #39 on: February 22, 2010, 02:05:39 pm »
God Bless You, Tod...32 hours of Surgery.   Your neck must feel awful.  I can't believe you're home and typing already!!!

Take care and keep in touch!!!  Congratulations and good riddance to Bob!
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Jim Scott

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Re: Ok, I have a date for surgery.
« Reply #40 on: February 22, 2010, 02:37:13 pm »
Tod ~

Congratulations on 'surviving' your AN surgery.  Like everyone else that has posted, I'm absolutely astonished at the thought of a 32-hour surgery.  Please elaborate when you're feeling up to it.  For now, get all the rest you need.  We'll still be here to cheer you on when your recovery has progressed.  

Jim
« Last Edit: February 28, 2010, 03:11:27 pm by Jim Scott »
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tod

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Re: Ok, I have a date for surgery.
« Reply #41 on: February 23, 2010, 09:01:06 am »
Thanks all. Started pureed foods today.  Still early into recovery...however, prognosis is good.
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

moe

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Re: Ok, I have a date for surgery.
« Reply #42 on: February 23, 2010, 09:30:59 am »
Tod,
I'm speechless. All I can say is God Bless You!!!! Pureed food is good, you are chewing and swallowing. Keep up the baby steps!
Maureen


06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

sues1953

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Re: Ok, I have a date for surgery.
« Reply #43 on: February 23, 2010, 11:01:29 am »
Hi Tod,  I'm so glad to hear from you and know that you came through surgery and have a good prognosis.  But 32 hours :o.  Holy cow I had to wait a day to respond just to let it sink in.  Please take good care and send more details as soon as you are up to it.

God Bless You  :-*

Sue in Michigan
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

Tod

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Re: Ok, I have a date for surgery.
« Reply #44 on: February 25, 2010, 10:12:15 am »
Not really sure how many days post-op i am, but things continue to improve.

Bob was sticky and entangled badly about my brain stem. The docs simply weren't going to walk away, so it was a very long day and a half for my family. As expected, Bob was benign, so with about 95% removal rate, we move to wait and watch for the future.

I had severe bedsores and surgically-related wounds. However, I have received top care of professionals all across the hospital and med schools. I have healed nicely thus far. I hope to have my ventric valve removed today. Would be good to move out of ICU finally.


i have had a life-altering experience thus far, and it is sure to continue as I look at rehab therapy and continued healing.

I am still limited to thick liquids and purees. Staying hydrated is a challenge without an IV. Speech therapy is certainly in my future.

Today and tomorrow should bring other news....
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

 


anything
anything