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Author Topic: verdict is in!!!!! and so is Steve's hat!!!  (Read 5536 times)

leapyrtwins

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #15 on: November 30, 2009, 09:53:52 pm »
Jo -

good news - on both accounts.

Looking forward to a picture of your new hat.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cyrmom2

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #16 on: November 30, 2009, 10:19:53 pm »
I glad your surgeon had good news for you today!  No growth is music to our AN ears!!!

Cyndi
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diagnosed 7-27-09 4 cm CPA
12 hr translab 8-25-09
Dr Chicooca & Dr Welling at OSU/The James
sliver of tumor remains on brain stem
left SSD & facial paralysis (was 6/6, 2-3/6 at 9 weeks, 1/6 within 4 months) 6 month MRI on 3-17-10.

4cm in Pacific Northwest

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #17 on: November 30, 2009, 10:21:11 pm »
Great news!

That and a Stevie orginal arriving the same time... wonderful.

Our Steve is a gem- isn't he?

Hope you post a photo of you in your toque soon.

Relish in the good day!

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

leapyrtwins

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #18 on: November 30, 2009, 10:30:04 pm »
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #19 on: November 30, 2009, 11:21:44 pm »
Quote from: anissa on November 30, 2009, 07:32:30 pm
Fabulous news!!!  Enjoy your trips and the holidays :)

This is the sort of enthusiasm for hats that I live for.  ;D

Jo, I am happy to hear that the hat found you on a good day. It occurs to me that your Dr. may have sort of hollowed out the tumor, leaving much of the shell in place. This a good step for minimizing nerve damage, and often is enough to finish off the tumor, since it cuts off blood supply, and is a method that may become more common.

It may be the shell that shows up on the MRI. If you do need radiation to finish it off, it will not be a big deal. I think you are in good shape. :)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

NancyMc

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #20 on: December 01, 2009, 02:21:31 am »
Quote
A Two-fer day:-)

Steve, what timing!  Nice job!
Can't wait to see the color.
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

wendysig

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #21 on: December 01, 2009, 06:59:33 am »
Jo,

I'm so relieved for  you -- what great news!  Have a great vacation -- you sure deserve (and probably need) it!  Keep us posted.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

cindyj

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #22 on: December 01, 2009, 08:45:15 am »
Glad to hear you didn't have a super sized growth of your AN!  Think Steve's theory is an interesting and likely one.

Even better, you have a hat-by-Steve!  We're expecting a picture of you and the lovely hat soon!  Sure it's getting about cold enough up there to wear it, right ;)  Every time I start to grumble about being cold down here in GA, I think about all my Canadian AN friends and...still grumble, but with sympathy for you guys!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

wcrimi

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #23 on: December 01, 2009, 09:42:07 am »
Quote from: sgerrard on November 30, 2009, 11:21:44 pm
Quote from: anissa on November 30, 2009, 07:32:30 pm
Fabulous news!!!  Enjoy your trips and the holidays :)

This is the sort of enthusiasm for hats that I live for.  ;D

Jo, I am happy to hear that the hat found you on a good day. It occurs to me that your Dr. may have sort of hollowed out the tumor, leaving much of the shell in place. This a good step for minimizing nerve damage, and often is enough to finish off the tumor, since it cuts off blood supply, and is a method that may become more common.

It may be the shell that shows up on the MRI. If you do need radiation to finish it off, it will not be a big deal. I think you are in good shape. :)

Steve

Interesting.  Thanks for offering that insight. It might explain a lot of things about the MRI results.

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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

another NY postie

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #24 on: December 01, 2009, 12:36:10 pm »
Jo, what double great news!!!! What a relief - now where is that picture of you in your new hat?!?!?! ;D
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

Keri

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Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #25 on: December 03, 2009, 12:25:57 pm »
or at least reveal the mystery color!
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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