Author Topic: Surgery Date at Hopkins, January 12  (Read 32625 times)

leapyrtwins

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Re: Surgery Date at Hopkins, January 12
« Reply #30 on: November 29, 2009, 04:50:38 pm »
 
Thanks for all the replies and offer to make me a hat. 

Wow, you've already been offered a hat by Steve  :o  Used to take years to get on that list - he must be working overtime!

Like Moe said, you seem to be getting all your ducks in a row.  Good for you!

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #31 on: November 29, 2009, 05:03:18 pm »
I am a lucky person.   Don't you think?   He doesn't know where to send it though!
 I'll have to tell him ...I'm interested, can you tell me about your surgery?  What does it say on your signature file?  I have to get my ducks in a row, there are too many ducks depending on me;   it gets confusing around here directing traffic with all the quacking!!!
 Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

kshcon

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Re: Surgery Date at Hopkins, January 12
« Reply #32 on: December 06, 2009, 08:24:27 pm »
Just had surgery with Drs. Niparko and Tamargo 11/19.  I am in the health care field and did a lot of research and met with several surgeons before deciding to go to Hopkins.  I felt I was putting myself in the best hands possible.  2+ weeks after surgery still feel the same.  They were great, and I completely trusted them.  It is all such an individualized decision, and a difficult one.  Research, talk to a lot of people, and do what you think it is right for you.

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #33 on: December 06, 2009, 08:29:49 pm »
Thank you for this.   How are you doing?   Is your hearing in tact and how is your facial nerve?   What was the size of your tumor?   Mine is 1 cm x 1.6 mm

I hope you are having a good recovery?  What was the date of your surgery?

Take care,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #34 on: December 07, 2009, 06:23:21 pm »
Dear KSchon,
I am sorry, I didn't read  your note carefully and was so excited to get your response.  You had your surgery just the day before I met Dr. Niparko.  My youngest daughter got her PhD at Johns Hopkins and is 6th author on a paper with him where he is 10th author.  I just found this out after I met him and haven't had a chance to tell him.  I will meet Dr. Tamargo on Dec 21st and will tell him about all my questions such as my previous surgeries that Dr. Niparko had concerns about.  In 1988 I had a cervial Laminectomy at Georgetown where the residents operated instead of the doctor that I consuted with.  He took the wrong disc and cut the nerve that moved my vocal cord...the Recurrent Laryngeal Nerve  (RLN)  and so a year later I had to have an anastamosis with the nerve that moves your tongue the ansahypoglossi otherwise my breathing was being compomised.   I couln't should or run or say certain words.  It has reinnervated somewhat.  Dr. Niparko is concerned about this nerve in the surgery and the care and preservation of the prior surgery in the current surgery.   It will be complicated.

I am hoping that you are recoveriing well.  It was good of you to write to me just two weeks post op and I thank you for that.   Take good care of yourself!!!!

Sincerely,

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Tricia (horsekayak)

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Re: Surgery Date at Hopkins, January 12
« Reply #35 on: December 08, 2009, 05:01:52 pm »
You have a lot to consider, I admire your concern for the others in your life, and hope that you will be gentle with yourself as you take care of your recovery.  I'll be sending good thoughts to you from down here in Georgia!!!
Tricia (horsekayak)-Diagnosed 8/10/09
1.5 cm right side AN
Gainesville, GA (near horses and Lake Lanier)
Linac radiosurgery at Shands Hospital/Univ of Florida  12/1/09  Go Gators!!!

"Excellence is to do a common thing in an uncommon way"...BT Washington

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #36 on: December 08, 2009, 06:16:09 pm »
Thank you for your good thoughts.  We all need them...don't we? ;)

Sincerely,

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Mei Mei

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Re: Surgery Date at Hopkins, January 12 RetroSigmoid
« Reply #37 on: January 10, 2010, 07:05:07 am »
 :)Well my friends, I'm off to Baltimore tomorrow to stay in a hotel so I can get up early enough to get to the hospital on time.  My daughter is going to stay there to be with me and it will be good to have someone in the waiting room out there to meet with the doctors.   I finally got a good night's sleep last night after several days of pre operative worry.

One thing ... last week the mastoid process ... the area behind the earlobe started to be tender and swollen.  I called the ENT on my case Dr. Niparko's office and a resident called me back.  I was concerned that this would get in the way of the surgery.   She said not to worry and that the tumor was probably pressing on the masoid process.  I wasn't before, so I guess the tumor is growing, not a good thing.  It good to get this tigger out of my head.

Will be in touch if I can Post Op from the Hospital, but If I can't,   I will write when I get home!!!!!

Sincerely,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

sues1953

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Re: Surgery Date at Hopkins, January 12
« Reply #38 on: January 10, 2010, 09:26:54 am »
Good Luck tomorrow Wow!  I just found this site and I am still trying to figure out how make contact.  I am newly diagnosed.  God Bless you!
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #39 on: January 10, 2010, 09:36:39 am »
Good luck to you, too with your new diagnosis.   I am sorry about your diagnosis, but you've found one of the best resources you'll ever need for your support and information.   Write to us whenever you need us.
Sincerely,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

leapyrtwins

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Re: Surgery Date at Hopkins, January 12
« Reply #40 on: January 10, 2010, 11:34:37 am »
Mei Mei -

best of luck to you.  I'm looking forward to hearing from you as a postie!

I'm confident things will go well, but I'll still keep you in my prayers  :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Vivian B.

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Re: Surgery Date at Hopkins, January 12
« Reply #41 on: January 10, 2010, 01:20:20 pm »
Hi Mei Mei,

Just wanted you my prayers and best of luck.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

suboo73

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Re: Surgery Date at Hopkins, January 12
« Reply #42 on: January 10, 2010, 06:40:07 pm »
Mei Mei,

All my thoughts and prayers as you go forward with your surgery.

Sincerely,

Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

pjb

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Re: Surgery Date at Hopkins, January 12
« Reply #43 on: January 10, 2010, 06:58:58 pm »
My thoughts and prayers will be with you tomorrow, hope to hear how you are doing really soon...

Regards,

Pat
Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

Jackie

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Re: Surgery Date at Hopkins, January 12
« Reply #44 on: January 11, 2010, 01:32:35 am »
Mei Mei,

Sending you good wishes for an outstanding recovery, you're in my prayers along with  your daughter too.
Blessings to you,
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

 


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