Hello - and welcome, Marta ~
I'm so glad you've discovered the ANA website and the discussion forums. Although our members aren't doctors and can't offer 'medical'advice, collectively, we have a wealth of practical experience dealing with an acoustic neuroma, from diagnosis to choosing a treatment to surgery and/or radiation and, of course, the recovery process and all of the emotional obstacles that seem to go with it.
We don't think having your life turned upside down and being in pain but not liking it constitutes 'complaining'. We call it 'venting' and if you need to 'vent', we welcome it, here. Crying is also allowed. Although our forums generally deal with the day-to-day aspects of living with an AN diagnosis, choosing a treatment and/or coping with the ramifications of the treatment, be it good or not-so-good, we also recognize in a way others probably cannot, that dealing with an acoustic neuroma has consequences. Even those of us that enjoyed a splendid outcome after surgery and/or radiation didn't escape totally 'unscathed'. We understand the upheaval this kind of medical problem brings to people's lives and we offer our wholehearted support as well as whatever advice we may be able to give. Others may not recognize your struggle but we do and we want to help you through it as much as we can. Consider us your 'AN family'.
Your chronic head/neck & shoulder pain is not uncommon in AN patients and neither are the headaches. Others may have some useful suggestions for you but unfortunately, I do not. However, I can sympathize with your feelings of isolation and I trust that knowing there are folks 'out there' with the same kinds of problems you have because of the same tumor will be an encouragement to you. Meanwhile, please stay connected here because we understand and we're eager to help in whatever way we can.