Author Topic: Smile recovery question  (Read 9771 times)

saralynn143

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Smile recovery question
« on: November 02, 2009, 05:49:35 pm »
Here is a picture taken on Halloween, a couple of days shy of 17 months post-op (which is today!).



My smile is crooked not so much due to the upper lip not pulling up but because the lower lip is not pulling down. Does that come later? Are there PT exercises for that?

Sara
« Last Edit: November 02, 2009, 05:51:35 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

nancyann

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Re: Smile recovery question
« Reply #1 on: November 02, 2009, 06:01:11 pm »
Sara:  beautiful smile, beautiful you.   (I'm absolutely no help with smile recovery ....)
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Jeanlea

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Re: Smile recovery question
« Reply #2 on: November 02, 2009, 07:47:55 pm »
Sara, your smile looks great!  I don't know how to help the lower lip move better either.  I have the same problem.  It seems to pull up with the top lip. 

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

saralynn143

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Re: Smile recovery question
« Reply #3 on: November 02, 2009, 08:19:53 pm »
I plan to contact the facial physical therapist at Washington University, but likely not until after the holidays.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

moe

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Re: Smile recovery question
« Reply #4 on: November 02, 2009, 08:36:03 pm »
Sara,
Sorry can't help you there.  :-\ You really do look good though! How about just putting your finger into the corner of your mouth and just pulling it down and repeating, holding it......
I actually read something about that somewhere about getting the mouth to lift. Who knows?
Practice frowning in the mirror over and over. That's easy for me to do!
Anyway, it'll happen one way or another, right?
We are determined women (and men).
Maureen

06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

saralynn143

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Re: Smile recovery question
« Reply #5 on: November 02, 2009, 10:14:32 pm »
I can't raise my left eyebrow either, although I can finally squint. The forehead and chin are at the outside edges of the face, so I would guess they take the longest to reenervate.

Thanks for your comments, and especially the compliments. This photo was taken from the absolutely worst angle. Straight-on is best.

Good night,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

epodjn

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Re: Smile recovery question
« Reply #6 on: November 02, 2009, 11:23:39 pm »
I have the same problem. No eyebrow movement or lower lip movement. My neuromuscular retrainer has me doing exercises where I try to make a snarl type face and kind of roll the bottom lip down and out. At this point I can't do it at all, but I keep trying. I'm 10 months out so it's probably a little early to expect much. If anyone would have told me a year ago how much I would miss my smile and my blink I never would have believed them. I'm sure plenty of you know just what I mean.
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

moe

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Re: Smile recovery question
« Reply #7 on: November 03, 2009, 10:22:47 am »
If anyone would have told me a year ago how much I would miss my smile and my blink I never would have believed them. I'm sure plenty of you know just what I mean.

Uhh yea.....I still miss my smile. I know I should get over it, but I can't! When I see people with sour expressions, I just want to say SMILE WILL YA????!
Still working on mine, not giving up. I HATE the feeling of the droopy left mouth, still after 3.4 years. Sorry that's just me!

What bugs me is that people are used to seeing me with a half smile, and when I mention how I am working on "getting my smile back" they say, "But oh you are beautiful."
Like "why worry?" Theses comments are well meant, but I just wish for once someone would say something like "That's great- don't give up!!!!"

I am a very patient person and it may take  a couple of more years. I'm glad I didn't pursue the quick fix of a T3 transfer (don't even know if military would cover that anyway.)
The 7/12 transposition, slow in rejuvenation, along with the acupuncture which is slowly but surely improving things, coupled with  potential further surgery to tweak everything- well, I'm a patient woman and I want it to look as natural as possible! Whew that was a mouthful.

Thanks for letting me vent! ;)
Maureen

06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

saralynn143

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Re: Smile recovery question
« Reply #8 on: November 03, 2009, 10:42:21 am »
That's GREAT, Maureen. Don't give up!

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

epodjn

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Re: Smile recovery question
« Reply #9 on: November 03, 2009, 12:15:36 pm »
Maureen,
You know you can always vent here! One of these days we are going to post SMILING pictures, cuz we don't give up. Glad to be in such good company. Thanks
Julie
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

Debbi

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Re: Smile recovery question
« Reply #10 on: November 05, 2009, 02:43:46 pm »
Hi Sara-

You and I are pretty much on a parallel track with the facial stuff, although my mouth "irregularities" are a little different in that the corner of my mouth pulls down, while that side of my lip tries to pull up (hypertonic cheek, I'm told).  I have a PDF version of the facial exercises I was given earlier this year - if you want me to email them to you, just PM me your email address).  Basically, the things that seem to be lip related are curling the upper lip, stretching it down over the teeth, things like that.  Some of it I can do, some not.  And, I haven't found anything that will make my eyebrow move - the upside, however, is that the right side of my 53-year old forehead is as smooth as a baby's bottom!  :D

Kidding aside, you look good, Sara - although I know how weird it is to look at a smile that is quite different than what you saw "before." 

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

mimoore

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Re: Smile recovery question
« Reply #11 on: November 05, 2009, 07:32:57 pm »
Sara,
I will be 17 months on the 8th and I am very close to where you are. The corner of my mouth will not lift so when I smile it is down and my bottom lip is not strong. Hope is a wonderful thing, you look beautiful, think how far we have come.



Uhh yea.....I still miss my smile. I know I should get over it, but I can't! When I see people with sour expressions, I just want to say SMILE WILL YA????! Maureen

I had to respond to this Maureen because honestly that was one of the hardest things to deal with. I have always been a friendly, smiley person and when you smile people smile back. Well after my surgery  I could not smile because of the paralysis. I tried to hibernate but honestly it just wasn't me and I just became more and more depressed. So I pushed myself to do things like go to the grocery store, walk the neighbourhood. It was so depressing NO ONE smiled at me. I would go home and cry. I didn't give up and I soon found out the people will smile at you once they hear your tone of voice and know you really are smiling.
Michelle  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Karen

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Re: Smile recovery question
« Reply #12 on: November 07, 2009, 04:16:56 pm »
Sara, I have the same problem.  My lower lip won't let my teeth show either.  I see Jackie Diels hopefully she can help when I see her again.  Sara I met you  in Chicago.  I saw Renee Ivens in St.Louis at first.  Have you seen her yet?  Karen
Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

saralynn143

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Re: Smile recovery question
« Reply #13 on: November 07, 2009, 06:32:48 pm »
No, I plan to make an appointment after the first of the year. It's just crazy right now with basketball starting up and the holidays right around the corner.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

jazzfunkanne

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Re: Smile recovery question
« Reply #14 on: November 08, 2009, 12:35:14 pm »
hi sara and jean, i am coming up for nearly 3 years post op, i have seen a big improvement in my smile only recently, re the chin, my physio told me to tape it down, also i use the neuro4 machine (btw i am in the uk) i feel the chin loosen so i hope its on the road to recovery, i also was given a exercise where you pull the muscels down in the chin area if that makes sense.x
over 4.5cm AN removed dec 06