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Author Topic: I have a date!  (Read 8340 times)

Vivian B.

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I have a date!
« on: October 16, 2009, 11:04:06 am »
Hi everybody,

I just received a call from the Gammaknife Centre at Toronto Western, I have a consultation on Oct. 28/09. My Neurosurgeon will be attending in addition to a team of doctors . Wish me luck? I will keep you posted.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

another NY postie

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Re: I have a date!
« Reply #1 on: October 16, 2009, 12:15:59 pm »
Good luck!  Sounds like they will be taking good care of you..keep us posted! :D
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

Jim Scott

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Re: I have a date!
« Reply #2 on: October 16, 2009, 01:32:54 pm »
Vivian ~

Congratulations on securing a consultation date at the Toronto GammaKnife Centre.  Have your questions ready (and written down), take notes (or bring a friend who will do it for you).  Most of all, remain calm and focused.  We'll look forward to learning the results of the consult on the 28th. 

I added your consultation to our 'AN Treatment Calendar':  http://my.calendars.net/an_treatments/d28/10/2009?authenticate=&display=M&style=B

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

yardtick

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Re: I have a date!
« Reply #3 on: October 16, 2009, 01:53:47 pm »
Lots of luck Vivian  :-* :-* :-* :-*

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Jackie

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Re: I have a date!
« Reply #4 on: October 16, 2009, 04:09:43 pm »
Best of luck Vivian, may your blessings be many!

Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

tenai98

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Re: I have a date!
« Reply #5 on: October 16, 2009, 04:26:55 pm »
best of luck floating your way....focus and take notes..
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

opp2

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Re: I have a date!
« Reply #6 on: October 16, 2009, 04:53:31 pm »
All the Best Vivian...Good Brampton vibes coming your way!
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

CHD63

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Re: I have a date!
« Reply #7 on: October 16, 2009, 07:30:11 pm »
Vivian .....

Always good to have things keep moving forward.  Thoughts and prayers continue.

Keep us posted.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: I have a date!
« Reply #8 on: October 16, 2009, 10:33:53 pm »
Congratulations, Vivian!  Great news!

Good luck,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Vivian B.

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Re: I have a date!
« Reply #9 on: October 17, 2009, 04:58:53 pm »
Thanks everybody for your ongoing support and prayers. I will definitely keep you posted.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Keeping Up

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Re: I have a date!
« Reply #10 on: October 17, 2009, 10:27:37 pm »
Vivian

Late to the post.

Sorry the tumor has grown and the watch and wait protocol is no more.

I had a consult at the Gamma Knife Centre in February.  The center is quite nice (the appointment rooms are rather nasty though!).  I mightn't have appreciated the bed side manner of the radiation oncologist I met, but appreciated his advice (just keep on waiting, and do something when the hearing is gone and/or the tumor grows).   I didn't get any comfort from him on 'long-term' outcomes of radiation (> 20 years)  which still bothers me and leaves lingering thoughts. (Those doctors see dire cases every day - so compared to my small benign tumor, I guess it didn't cause them much concern.)  I am sure I will be back for another consultation ... just hoping it will be several years away.

It will be nice you have your neurosurgeon going with you.  (I went by myself - in hindsight, a bad idea.)  They have a senior neurosurgeon on the team as well - it would be an interesting conversation to hear the various doctor's opinions.

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

Tumbleweed

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Re: I have a date!
« Reply #11 on: October 18, 2009, 12:40:51 am »
Good luck, Vivian! I think GK is a great treatment choice. It's time to put that freeloading tumor on Death Row!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Vivian B.

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Re: I have a date!
« Reply #12 on: October 18, 2009, 10:00:55 am »
Hi Ann and TW

Thank you both for the all the information, support and good wished. I will keep everybody informed.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Kiwi Don

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Re: I have a date!
« Reply #13 on: October 18, 2009, 08:39:21 pm »
Hi Vivian,
Thoughts and prayers from afar
Don
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24July09 Diagnoised with Left AN 2.0cm x 1.9cm
Translab Scheduled 7April10

"Received the Ticket, Boarded the Train, and now the Journey has begun??"

Mickey

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Re: I have a date!
« Reply #14 on: October 19, 2009, 07:43:17 am »
Best Wishes for a speedy recovery! Mickey
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