Hello, all. I previously wrote as "Oldie Newbie" in the post-treatment section as I'm post GK, but I thought I would switch over to pre-treatment temporarily--since I'm about to have a translab on 10/1 at Mayo with Dr. Link and Dr. Driscoll. My GK from 3-1/2 years ago has been deemed a failure since my AN continues to grow (now borderline small-medium). I know I'm in the very small percentage of failures but wouldn't have done it any differently. I was challenged at the conference by someone who questioned my original decision and said I should have had surgery at House when I was diagnosed. We each have to find our own way, doctors we're comfortable with, and what makes the most sense to us. It's an individual journey. BUT! The support here is immeasurable and I know I will need it more once I have the surgery and begin recovery. I've been told I have 100% chance of temporary facial paralysis and 20% of permanent. Not the best odds, but I'm hoping my luck will turn and I will have the temporary. Losing the hearing and balance nerves are minor at this point, as I've lost most of my hearing on the right and my brain has adapted to my imbalance for the most part. I work at Mayo and let the staff in our division know about my surgery today. One of the physicians said I was the most "balanced" person he knew!
As I wrote in another post, I have excellent care, my faith is strong, and I have great support from my husband, family, and friends, not to mention my coworkers. This site and your support is icing on the cake!
I will keep you posted as things move along. I'm on the calendar!
P.S. I am also a caregiver for my mom. She lives in an assisted living facility, but I am her main support. If you say a prayer for me, please include her as well! This will be difficult for her.