SO the lost MRI order from California saga never resolved... Sooh I went to see my ENT, in Oregon, for hearing tests etc. The ENT ordered the MRI instead and just contacted my surgeon to find out the detailed specs. I get the scans done, pick up the CD and radiologist report from the local imaging place... then yesterday I FINALLY get a call from Stanford "I have the Dr's order here..
." (Gee took them long enough!!
) What a fiasco!!
SO the good news is I still have perfect hearing in the good ear (whew). NO additional AN tumors (schwannomas) evident
in the radiologist report (I collected just yesterday) ... although I have not heard from the either doctors yet. SOâ€¦ no NF2
(whew- I was so worried about subjecting my youngest child to testing etc.) Please know my heart goes out to many of you with affected family members that go through this.
So the bad new on the report was "Para-nasal sinus disease"...
I googled it and it could be a number of things ... that can be treated with medications or in severe cases- surgery (Oh not again!
I am sooh done with hospitals, anesthesia, constipating
pain meds.) Interesting that hyperacusis and finding â€œlistening to oneâ€™s own voice painfulâ€ â€¦can be a symptom (which I have had since I woke from AN surgery)
So there has been a mucus drain issue there for sometime. Wouldnâ€™t it be cool if something can actually be done to get rid of my hyperacusis?
I have suffered with these last 2 years... Thanks to all for your input.
The last month of wondering if I had another tumor in the hearing ear and if I was an Nf2 candidate has been VERY frightening- especially when I had the diminished hearing in the good ear (which appears to be from mucus build up in the Para nasal sinus area).
You folks are SOOH tremendously supportive and I am so forever thankful to you-all. The ANA is such a fabulous organization- isnâ€™t it?
Pre follow-up MRI anxiety is now behind me... now to figure out the "para-nasal" stuff... an plan of action.