Author Topic: Palpebral Spring  (Read 9890 times)

MCLARKE46319

  • New Member
  • *
  • Posts: 21
Palpebral Spring
« on: August 18, 2009, 01:34:36 pm »
Has anyone had the Palpebral Spring put in their eye that does not blink?  If so what doctor did it and where is he located.  Thanks for your help.  My daughter Meagan is considering this and we would like to find someone close to Illinois if possible.

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Palpebral Spring
« Reply #1 on: August 18, 2009, 02:22:58 pm »
I met with Dr. Levene (sp?) at the Symposium he is in the LA area.  He made it sound like that he was one of the few that did it.  However, I went to a session right after that with Dr. Cho (Chicago area) and he made reference to having to REMOVE them from patients...SOOOOO, I am very torn!!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Re: Palpebral Spring
« Reply #2 on: August 18, 2009, 03:16:06 pm »
When I went to see Dr. Philip Custer at Washington University, we discussed the eyelid spring. He said there are only a handful of surgeons whom he would consider experienced enough to do them (and he chooses not to). He also said they work very well when they do work, but they have a more than 25% complication rate, including extrusion (in other words, poking through the eyelid after insertion.) He did not recommend the eyelid spring for me because I have thin skin on my eyelids. I did not want to travel again for surgery anyway and was comfortable with the platinum weight, so that is the route we took.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Palpebral Spring
« Reply #3 on: August 18, 2009, 07:08:10 pm »
Kay -

I don't have my ANA symposium program handy, but I'm not sure Dr. Cho is from the Chicago area.  I could be wrong, but I thought he was from some other state.

Can someone out there with a program look it up for us? 

Thanks,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Palpebral Spring
« Reply #4 on: August 18, 2009, 07:10:59 pm »
I guess the reason why I thought that is that he had slides of "Gina" that we met in the Hospitality room and she is from the area...I guess it was her - it was just from the eyes up but I really think it was her b/c I had noticed her beautiful big EYES...

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Re: Palpebral Spring
« Reply #5 on: August 18, 2009, 07:16:39 pm »
I don't have my ANA symposium program handy

I do. :)

Dr. John C. Choi is an ophthalmologist in a private practice in Warrenville, IL.

Dr. Robert E. Levine is an ophthalmic plastic surgeon at USC and House Ear Clinic in LA.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Palpebral Spring
« Reply #6 on: August 18, 2009, 07:18:06 pm »
Thanks Steve - we can always count on you!

;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Palpebral Spring
« Reply #7 on: August 18, 2009, 07:20:11 pm »
Thanks, Steve.  I stand corrected, Kaybo.

I'm glad to hear Dr. Choi is from Illinois; sounds like he might be a big help for Meagan.

Jan
« Last Edit: August 18, 2009, 07:31:03 pm by leapyrtwins »
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

MCLARKE46319

  • New Member
  • *
  • Posts: 21
Re: Palpebral Spring
« Reply #8 on: August 19, 2009, 09:55:26 am »
Thanks for the help from everyone.

Meagan

  • Jr. Member
  • **
  • Posts: 87
  • Picture
Re: Palpebral Spring
« Reply #9 on: August 19, 2009, 12:51:51 pm »
Thanks all for the comments....I was all ready to jump on a plane and then went on here....I was in the Choi workshop and he steered me into the direction of not doing.  Dr. Levine can fit me in in 3 weeks so if anyone is interested.

I have the eye sewn on the side so i think i will venture down the gold weight section....as i never had it done.

Dr. Levine is a good seller but I can't risk it not working when I live so far away from the doctor.....Thanks all :)
5 cms, Surgery Jan 3 2007

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Palpebral Spring
« Reply #10 on: August 19, 2009, 12:55:06 pm »
So Meagan, am I to understand that MClarke is one of your parents?  How cool is that?  8)

Great family support  ;D

I missed you at the symposium; sorry!  Will have to make one of your local meetings.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Meagan

  • Jr. Member
  • **
  • Posts: 87
  • Picture
Re: Palpebral Spring
« Reply #11 on: August 19, 2009, 01:02:07 pm »
Yes my mom is MClarke....she was my helper of all AN things....i know have your word that I will see you at a meeting....so you better hold to it ma'am....have a great day.
5 cms, Surgery Jan 3 2007

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Palpebral Spring
« Reply #12 on: August 19, 2009, 01:11:30 pm »
Aren't moms fantastic?  Mine is my helper on all things - AN and otherwise; my dad too.

I'm good on my word.  Please make sure I get the next invite - I may have to drag two surly 13 year-olds with me, but I'll be there!

And I'll even show my head and my BAHA to anyone who is interested!
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

nancyann

  • Hero Member
  • *****
  • Posts: 2249
  • carpe diem
Re: Palpebral Spring
« Reply #13 on: August 19, 2009, 01:27:00 pm »
My plastic ocular surgeon also said he's had to remove them also.  This is why I went with the weight.
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

MCLARKE46319

  • New Member
  • *
  • Posts: 21
Re: Palpebral Spring
« Reply #14 on: August 20, 2009, 03:25:09 pm »
How does the weight work?  Are you able to blink?  Where is it placed on the eye lid?

 


anything