Hello and thank you for sharing your experience. I've heard a lot of good things about Dr. Tamargo at Hopkins so I am sure you got the best care possible. I'll have my MRI this Wed to see if there is any tumor progression since July. And if there is growth, I'm pretty sure I'll go with CK at Georgetown. In July my AN was 1.2 cm and my hearing is intact, I also haven't had much dizziness, so if I CK stops the growth, I can definitely live with my very minor symptoms. My AN was pretty close to the brainstem, but the radio-oncologist (Dr. Gangon) I spoke with said I was fine for CK, so will see. Hopefully, the thing has not grown much. Although I've seen a lot of posts about ANs growing dramatically between MRIs.
Thank you for writing and perhaps we'll get to meet at one of the support group meetings.
Best wishes to you.