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Author Topic: Finished my ck!  (Read 3668 times)

cbp

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Finished my ck!
« on: March 03, 2009, 06:13:56 pm »
I am glad to have finished my cyberknife treatments last week and be on the "other side" of treatment. It seemed like it took me such a long time to decide on treatment, but once I did, everything moved so quickly and now I'm done. They were able to cover both of my AN's in a single field of radiation. I am feeling ok...pretty tired and I actually think that coming off the darn Decadron is the worst part of the whole thing.  So far, my hearing is still good, a little dizzy, but I was dizzy pre-ck, so that was expected.
Thanks to everyone who posts here, it is so nice to know that you are company of others who "get it".
Now, I get to do the waiting game that comes along with ck and hoping for the best!
Logged
Diagnosed Nov. 1, 08
1.6x1.5cm Right AN, secondary Right AN 4mm
Cyberknife at Barrows Neurological Institute, Phoenix, AZ
Feb. 24,25,26
Now playing the waiting game.

carter

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Re: Finished my ck!
« Reply #1 on: March 03, 2009, 08:49:44 pm »
congrats on making the step.   feels good having it done.

i am 7 weeks past ck now....  it got much better.  i had fatigue.  it got better in a few weeks.  week 6 was great.  i was able to sit on a tractor for 8 hours on sat ... on sunday to run a chain saw and cutter to trim limbs on a half mile of country road.  a few weeks ago, i was working 2 days adn taking off 1...   life does improve!


good luck - take care
Logged
Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

sgerrard

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Re: Finished my ck!
« Reply #2 on: March 03, 2009, 10:26:35 pm »
Yay for postie Camille!

It's great that they got both ANs. You will no doubt have some odd feelings in the days ahead, but the outlook is bright. :)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

ppearl214

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Re: Finished my ck!
« Reply #3 on: March 05, 2009, 01:45:47 pm »
Congrats on Postie-hood! OMG! You got a "BOGO" (buy one, get one for free!)... a "2-fer!"   :)  Very thrilled it has worked out, that they were able to zap both of them and wellness wishes to you!

Congratulations!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: Finished my ck!
« Reply #4 on: March 05, 2009, 04:40:02 pm »
Camille ~

Just wanted to add my congratulations on your finishing CK.  I hope and will pray for a smooth recovery for you - as well hoping you now have 2 dying tumors.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

suboo73

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Re: Finished my ck!
« Reply #5 on: March 05, 2009, 09:04:09 pm »
Congratulations, Camille! 
Please keep us posted on your progress, OK?

All my best in the days to come  :)

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

leapyrtwins

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Re: Finished my ck!
« Reply #6 on: March 05, 2009, 10:59:32 pm »
Congratulations, Camille  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Pooter

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Re: Finished my ck!
« Reply #7 on: March 11, 2009, 05:28:33 pm »
Yea!  Welcome to postieland!  Glad that things are going well.

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Tumbleweed

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Re: Finished my ck!
« Reply #8 on: March 12, 2009, 11:34:37 pm »
Congratulations, Camille, you toasty postie!  :D

You are on your way to feeling better! It's just a waiting game now.

Best wishes,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

pauline

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Re: Finished my ck!
« Reply #9 on: March 19, 2009, 08:58:14 am »
Congrads to you!  Please keep us posted on your progress which I hope is going smoothly!
I am a patient of Dr. Porter at Barrows also and am looking at Cyberknife this year!

Pauline
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Pianist & Piano Teacher
Diagnosed 6/27/08
Watch and Wait

goinbatty

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Re: Finished my ck!
« Reply #10 on: March 19, 2009, 07:11:24 pm »
Congrats!!!  Deciding on treatment is such a relief but having treatment over with, even better.  Take care of yourself. 
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change
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