Author Topic: Necrosis!!!!!!!  (Read 4702 times)

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Necrosis!!!!!!!
« on: February 22, 2007, 12:48:11 pm »
Just saw my doctor for his consultation after my Feb 8th MRI (10 mos since treatment) and told me we have

NECROSIS
So, yeah, I'm thrilled. ;D ;D

Doesn't mean any of my symptoms have gone away...sorry to say. :(

But overall, I guess I'm pretty happy today.   :) :D :) :D :) :D

Sue in Vancouver

PS
My doctor said if he had an AN, he'd choose radiation over surgery.  And he's a neurosurgeon. (Who also does radiosurgery.)

« Last Edit: February 22, 2007, 12:51:46 pm by Sue »
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: Necrosis!!!!!!!
« Reply #1 on: February 22, 2007, 01:44:32 pm »
*runs in, gives Poet-Lorry ette a BIG, MASSIVE congrats huggle*

CONGRATS TWIN NECROSIS SUE!!!!!  FAB NEWS!!!!

xoxo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: Necrosis!!!!!!!
« Reply #2 on: February 22, 2007, 03:50:37 pm »
I've been huggled!!  Thank you.

Ode To This Great Group

When I learned of my AN,
I could have p****.
But instead we went ahead,
And had it nuked!

I thank you one and all,
For being such a dear,
You've helped me get through,
What was a hellish year.

The odds of getting this,
Are ten in a million, you see,
But let me tell you all,
You're one in a million to me.
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Derek

  • Hero Member
  • *****
  • Posts: 557
Re: Necrosis!!!!!!!
« Reply #3 on: February 22, 2007, 05:15:46 pm »
Congrats on blitzing the 'little bugger' Sue...also I was very interested to learn that your neuro recommends radiosurgery over microsurgery...did he say why?

Regards

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

HeadCase2

  • Hero Member
  • *****
  • Posts: 778
  • Carpe Grog
Re: Necrosis!!!!!!!
« Reply #4 on: February 22, 2007, 05:37:43 pm »
Sue,
  Excellent news!
Rob

1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

flier58

  • Full Member
  • ***
  • Posts: 147
Re: Necrosis!!!!!!!
« Reply #5 on: February 22, 2007, 07:06:01 pm »
Hi Sue,
I am just so VERY HAPPY - it is a wonderful news for you and for all of us.  Congrats.
Flier58

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Necrosis!!!!!!!
« Reply #6 on: February 22, 2007, 07:31:17 pm »
   
   YEEEAAAAAHHHH  !!!!!!!

                                          SO HAPPY FOR YOU SUE !!!!!

                                           TIME TO CELEBRATE  !!!!!!

   Always good thoughts,    Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: Necrosis!!!!!!!
« Reply #7 on: February 23, 2007, 01:22:25 am »
Congrats on blitzing the 'little bugger' Sue...also I was very interested to learn that your neuro recommends radiosurgery over microsurgery...did he say why?

Regards

Derek

Hi Derek,

My first appointment with a neurosurgeon was on a Monday and he said that actually my doctor would be a different doctor and I would see him on Friday and he would go over my treatment plan.  So, I waited until Friday and then my husband and I met with Dr. Modha.  He is a neurosurgeon but he does radiosurgery also.  He told me that the treatment of AN's varies across the country depending on the area and the doctors. He said that for him, there were too many surgical patients who ended up with permanent paralysis of the face (across the country, not specifically his patients!) and he listed the risk factors for me, such as stroke.  Perhaps he thought that with my medical history of diabetes and my age (I'd just turned 60), that microsurgery was too risky.  He said "Microsurgery is a very big deal."  Having said that, my newest ENT thought that neurosurgeons were not so fond of acoustic neruomas and that I should have seen the ear surgical specialist that I can never remember the name of. He said "They LOVE AN's".  Then he kind of shrugged and said, "well, this will take care of it too" or words to that effect. But he seemed disappointed that I hadn't opted for microsurgery instead. And I thought...Hey, YOU get an An and have them open YOU up, if you like surgery so much, buddy"  Or words to that effect! ;D  Anyway, I think my doctor likes to play with big machines!    Obviously, if my AN had been much bigger, I'd be telling a different story. 

Thanks everyone for the cheers.  Always nice to hear, even if it's mostly in my right ear! ;D

Love ya,

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

pearchica

  • Sr. Member
  • ****
  • Posts: 320
  • Hey!
    • Political Chic Chat- an Independent Political Cocktail for Women
Re: Necrosis!!!!!!!
« Reply #8 on: March 08, 2007, 08:40:44 pm »
WOOOHOOOOO GIRLFRIEND!!! Love that word!  Love the poem. Read it to my husband. He laughed and thought it was great to. I think we may have to have a drink in celebration on your behalf!!! Here's to Sister Sue who's tumor is dying, so drink up drink up.... Yeah! Take care, Annie
Annie MMM MY Shwannoma (sung to the son My Sharona by the Knack-1979)
I have a TUMAH (Arnold Schwarzenegger accent) 2.4 x 2.2 x 1.9CM. CK Treatment 2/7-2/9/07, Stanford- Dr. Stephen Chang, Dr. Scott Soltys

shoegirl

  • Sr. Member
  • ****
  • Posts: 311
Re: Necrosis!!!!!!!
« Reply #9 on: March 09, 2007, 02:38:30 pm »
 :) :) :) :) :) :)

Congratulations Sue!  So happy for you!  Wonderful news! 

Suzanne
left side 2.0cm x 1.3cm  
Cyberknife - 12/2005
The Barrow Institute, Phoenix, AZ