Author Topic: 2 years Post CK  (Read 524 times)

DanFouratt

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2 years Post CK
« on: September 15, 2025, 12:28:54 pm »
Two years ago I was at UNC for my 8:30 appointment with the CK machine.  The only thing that went wrong that day was it did not happen until 10:00 (typical of all appoints at UNC). I was home by noon and BBQing that evening.  I took no medications and only had one dizzy spell that afternoon.  I felt well enough the next day to drive 2.5 hours to Charlotte to pick up a wedding gift for my son.  I might have been a little off as my wife talked me into shoe shopping at the big mall there after we picked up the gift.  So after a 4 hour walk I drove home.  No issues. I walked 18 holes of golf the two days later and the only real issue was the first swing.   I sent people running but by the end of the first hole I felt fine.

I waited 8 months for my first follow up MRI and the tumor shrank a little. My next one is not until January 2026 and I am hoping for the best. 

Other then the hearing loss and tinnitus which were both present before the procedure I have had no other side effects, even brief ones.  I share this as I want to thank the community who helped me get to and through the procedure,  Also to let people know there are great outcomes.  We hear too much about the negative.  As I tell people with 1 being worse and 10 best I scored a solid 10 with the procedure.

Thank you all,
Dan



Dan Fouratt             64 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

ESH

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Re: 2 years Post CK
« Reply #1 on: September 16, 2025, 06:48:48 pm »
Dan, I'm thrilled to hear you are doing so well.

Ellen
Ellen
01/16/25 MRI diagnosis 17 mm x 8 mm
Currently watch & wait
Tinnitus, hearing loss

GatorMan

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Re: 2 years Post CK
« Reply #2 on: September 20, 2025, 01:39:19 pm »
Thanks for sharing, Dan! As someone who's only just begun this journey (diagnosed May 2025), it's reassuring to read the experiences of others and know what might be in store for me.

mwatto

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Re: 2 years Post CK
« Reply #3 on: Today at 01:40:51 am »
So pleased for you Dan! We really need good feedback to stay positive! All good my side also after CK 6 years ago!
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2021, 2022 - stable no change
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2024, 2025: No change in AN size or hearing status.