Author Topic: Hoping to get a Scleral Lens...  (Read 313 times)

KathleenPollard

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Hoping to get a Scleral Lens...
« on: July 22, 2025, 12:38:23 pm »
Hi! I am so happy to be able to connect with all of you on this forum.  Your insight is priceless.
Here is where I am:
- I cannot close my right eye due to my facial nerve being severed during my AN surgery in 2022. 
- I have a gold weight and can MOSTLY close it at night.
- I use lacrilube or systane overnight and ReFresh drops all day long.  Some days are better than others.
Recently, I got fit for a Scleral Lens.  When I went to put my new lens in, I couldn't see a thing.  I thought that maybe the residual lube from the night before was making it cloudy.  My doctor ordered a different lens. I will try that one in a few weeks.
Here are my questions:
- Is there an overnight drop that I could try instead of the lube?
- Did this happen to anyone else?
- Can I get a SL if I can't close my eye over it to "clean it"?
Thank you so much!  I think the lens sounds amazing and I would really like it, but I don't want to buy it and then wish I hadn't.
Kathleen

Jill Marie

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Re: Hoping to get a Scleral Lens...
« Reply #1 on: July 28, 2025, 02:40:00 pm »
Hi Kathleen,  I suggest you do a search on this site under eye issues and read the previous posts on the scleral lens.  I had one years ago but it didn't work out.  I now use ACUVUE OASYS® 1-Day lens with HydraLuxe. I've been really busy the last couple of weeks so sadly don't have time to tell you more.  You can find out what I and others have found out about the lens when you do a search.  Hopefully others will post to you as well.   If you still have questions after reading some of the older posts please feel free to ask for help. Good luck! Jill Marie
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

KathleenPollard

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Re: Hoping to get a Scleral Lens...
« Reply #2 on: July 29, 2025, 11:16:54 am »
Thank you!
The previous posts were very helpful.  Kathleen

KathleenPollard

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Re: Hoping to get a Scleral Lens...
« Reply #3 on: July 29, 2025, 11:19:33 am »
Jill Marie, Can you blink your eye that you wear the daily contact lens in?  Thanks

Director

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Re: Hoping to get a Scleral Lens...
« Reply #4 on: July 29, 2025, 11:26:39 am »
Hi KathleenPollard

The ANA has several volunteers with a scleral lens and eye resources that might be helpful for you.

Please contact Melanie at the ANA for more information. melanie@anausa.org

Also, this organization has some great information

My Big Fat Scleral Lens: https://www.mbfsl.org/

Regards,

The ANA Team

Jill Marie

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Re: Hoping to get a Scleral Lens...
« Reply #5 on: July 29, 2025, 01:17:58 pm »
Kathleen, I wear the daily lens in my left eye.  My left eye doesn't close all the way so I wear a patch at night.  The left eye won't blink on its own but it does blink in unison with the right.  However the left doesn't do a full blink.  Unfortunately I still use eye ointment 24/7, I did with the scleral lens as well.  However, I had a lot of pain and redness with the scleral lens a few months after I started using it.  Perhaps I was allergic to it in some way?  I was the second person on this site to get the lens and when I first had it I loved it and was so thankful that Dena King posted about it.  I still remember her name because her posting about the lens changed my life and several others on the board at that time.

Downside to scleral lens is the cleaning where I just throw the daily lens out.  Downside to daily lens is the cost if your insurance doesn't cover it.  The daily lens costs about $1.25 a day.  The daily lens I use isn't your average lens, it's made to help people with dry eyes.

Depending on how dry your eye is you might be able to use the Refresh Plus Lubricant eye drops that comes in a single use dose.  I use them in my other eye as it's getting drier due to age.  You can also use the Refresh Mega 3 Optive which is thicker than the Refresh Plus.  I use the Mega 3 in the winter as my eye gets dryer than.  I believe the single use dose drops by Refresh are thicker than the Refresh drops that come in a bottle.

Everyone's experience with the scleral lens is different so just keep trying tell you find what works for you. Good luck,  Jill Marie
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.