Hi JohannaZ, and welcome to the ANA Forums! I'm glad you found us!
Like you, I have a small acoustic neuroma and have almost completely lost my hearing in my AN ear, and I also have constant tinnitus, and have suffered from balance issues. Unlike you, however, I have not had the headache issues.
I did seek a vestibular therapist to help me with my balance issues, and that has almost completely done away with my vertigo and balance problems. Every once in a while I have a brief balance issue, but then I remember my therapy and do a few exercises, and it goes away. I highly recommend seeing a vestibular therapist (and not merely a regular physical therapist).
In terms of family, I recommend getting the materials the ANA offers and even having your family members watch a couple of the ANA videos with you. While you do not want to burden your family, giving them some exposure to what others with acoustic neuromas have had to go through may help them to be more supportive of you in the future. I am sure they just do not understand. And the ANA offers some of the best educational material you can find.
In terms of your headaches, while I have not experienced them, having headaches is not uncommon. I think I remember seeing an ANA video addressing headaches and acoustic neuromas.
Best of wishes on your journey!
Don