AN Diagnosed on my left brain - inputs needed

[vthiru1]

Hello All,

Here am writing after my surgery. Yes it was successful and they have removed the tumor completely and preserved my facial nerve. I have lost hearing on my left ear, but getting used to it. Also, I have a blood clot on my Sinus vein and thats not affecting me at all. Am currently on blood thinning meds(Warfarin) for that and it may continue for 3-4 months. Overall really happy. Still have some dizziness and balancing issues. Am doing my part my walking daily around 2-3 miles and slight excercising. Please advice me of any other activities I can do to improve my balancing and dizziness. Thanks all for your prayers and wishes

[luke_simmo]

Great to hear you are doing well, Vivek!

I was lucky enough to have vestibular rehabilitation available post-surgery. This involved three sessions where the therapist tested my balance under various situations as well as visual tests. At the end of each session she gave me exercises -- things like standing on a pillow with my eyes closed (for balance) and staring at a picture on the wall while moving my head from side to side (for vision). I'm not sure how useful these sessions were as my balance was pretty good after surgery, but they sure didn't hurt!

I feel like walking was the best thing for me -- so keep that up!

Hope the blood clot clears up soon.

Take care,

Luke

[Jim Scott]

Hi, Vivek ~

Just wanted to offer my congratulations on your successful AN surgery.  We appreciate those members who keep us updated, as that is an encouragement for other AN patients.

Walking as much as possible - especially on uneven terrain - and basically doing things that are a bit challenging are how I regained my normalcy, post-op.  Fatigue may be a factor so don't overdo it - but don't stop trying, either.  We're with you!

Jim

[Gloria Nailor]

I am so happy for you and that the surgery is behind you.  I am so glad your facial nerve is intact! I am amazed that you are walking 2-3 miles a day, you are doing amazingly well.  I have been thinking of you.  Make sure you don't push yourself too hard, be sure to rest, take care.

[vthiru1]

Freinds,

Just an update ..am recovering really well..My blood INR went to 5.8 today, which is very high and the doctor has advised me to hold off on warfarin for couple of days..am not doing my walking for last 3-4 days due to snow and cold storm..bought the bosu home trainer for balancing, which I believe will help me a lot with my balancing..just have a question..my incision is healing fast, but am kind of having a stiff/hardness around the incision, when I turn my neck to the opposite direction? Is this normal as the wound is healing or something to concern about? Please share ur experiences

Thanks,
Vivek

[Jim Scott]

Freinds,

Just an update ..am recovering really well..My blood INR went to 5.8 today, which is very high and the doctor has advised me to hold off on warfarin for couple of days..am not doing my walking for last 3-4 days due to snow and cold storm..bought the bosu home trainer for balancing, which I believe will help me a lot with my balancing..just have a question..my incision is healing fast, but am kind of having a stiff/hardness around the incision, when I turn my neck to the opposite direction? Is this normal as the wound is healing or something to concern about? Please share ur experiences

V ~

Thanks for the update!

The 'hardening' sounds like normal healing but I would suggest asking your doctor about it to get a credible medical opinion.

Jim

[Gloria Nailor]

Hello Vivek! glad to hear things continue to go well.  I remember a tightness around my incision too.  I wouldn't worry unless it felt more tender than it has been feeling or it was red and felt warm. Good to check with the doctor though. It does get better with time, can't even feel mine when I turn my head now. Be well, Gloria

[luke_simmo]

Just noticed another thread in the Post-Treatment section on exactly this topic:

http://www.anausa.org/smf/index.php?topic=19468.0

Sounds like it is normal.