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Author Topic: Sorry I haven't been here  (Read 3961 times)

Rivergirl

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  • Rivergirl
Sorry I haven't been here
« on: January 23, 2012, 07:38:44 pm »
I have been away from the forum, kind of away from a lot of things.  My husband and I have been hospicing my brother who was diagnosed with lung cancer in September.  The cancer went through him very quickly and he lost his battle on Jan 2nd.  We were able to keep him here with us, his bed was in front of the slider overlooking his beloved river, he was peaceful.  I am proud of the amazing job we did caring for him and proud of his strength and bravery, what a journey.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

saralynn143

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Re: Sorry I haven't been here
« Reply #1 on: January 23, 2012, 09:26:37 pm »
I'm sorry for your loss, Rivergirl.
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Tod

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Re: Sorry I haven't been here
« Reply #2 on: January 23, 2012, 10:44:31 pm »
Welcome back, I'm sorry for your loss. I am also very impressed with your willingness to help your brother through hospice. I think that is wonderful thing to do, although I know how very hard it can be.

Blessings to you and your husband,

tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Jim Scott

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Re: Sorry I haven't been here
« Reply #3 on: January 24, 2012, 01:19:59 pm »
Rivergirl ~

My condolences on the loss of your brother and my admiration for the way you and your husband took responsibility for making your brother's last days comfortable and relatively serene. 

I believe that, if nothing else, these kinds of trying experiences tend to help us gain a better perspective on our own lives. 

Jim  
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

New girl

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Re: Sorry I haven't been here
« Reply #4 on: January 26, 2012, 04:49:29 pm »
Rivergirl - Sorry for your loss.   :(  You are a good sister.
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9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

Mark H

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Re: Sorry I haven't been here
« Reply #5 on: January 30, 2012, 09:58:32 am »
Rivergirl.
I'm sorry for your loss. I live on a river myself so I'm sure it meant a lot to your brother to be there. My computer is right  by  the sliding door so I can sit and watch it go by while I'm home.
Mark
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Jackie

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Re: Sorry I haven't been here
« Reply #6 on: January 30, 2012, 11:40:24 am »
Rivergirl,

So very sorry for the loss of your brother. It takes very special people to open their home as the final resting place for a loved one! May the memories of your brother be of the happy times that you shared, and know that you have a special place in the hearts of many!

Praying for your peace,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

opp2

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Re: Sorry I haven't been here
« Reply #7 on: January 31, 2012, 02:35:33 am »
Quote from: Jackie on January 30, 2012, 11:40:24 am
Rivergirl,

So very sorry for the loss of your brother. It takes very special people to open their home as the final resting place for a loved one! May the memories of your brother be of the happy times that you shared, and know that you have a special place in the hearts of many!

Praying for your peace,
Jackie

What she said Rivergirl...
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

ppearl214

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Re: Sorry I haven't been here
« Reply #8 on: January 31, 2012, 04:47:53 am »
May he be at peace now... and may your heart be at peace, knowing you helped to bring the comfort his body and soul was seeking.  Healing hugglez to you during this difficult time.  :-*

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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