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Author Topic: New member says Hi!  (Read 9058 times)

moe

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Re: New member says Hi!
« Reply #15 on: November 16, 2010, 10:57:41 am »
Quote from: mandy branham on November 16, 2010, 10:01:24 am
I just don't know if my symptoms are just my over thinking or if I am truly feeling more symptoms,

Mandy,
Very common to be more aware of your symptoms once you find out that you have the bugger in your head, and to think that the symptoms are "worse." The mind is amazing.
I was actually kind of RELIEVED to hear that I had the AN, because it pinpointed why I hadn't been feeling right for years. (mine was insidious, slooooooow growing over they think >20 years)
So glad that you know it is there, and it is still within the size for radiation  and time is on your side.
Dang holidays are coming up, but don't let this thing get you down. ;)
Maureen



Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Lizard

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Re: New member says Hi!
« Reply #16 on: November 16, 2010, 11:25:46 am »
Mandy,
Somehow I missed this yesterday, I just wanted to welcome you to the forum as well and to say make sure you feel absolutely comfortable with your Dr(s).  I'm attaching a great list thread with a list of questions to ask the Dr's, take notes because its hard to remember everything.  I had a friend come with me and basically be my scribe.  Add your own questions to the list and it will help you to cover a vast majority of the questions you may have or yet to come up with.  Also, make sure you speak with a nurse about calling in to ask further questions, you want to make sure you have a Dr who is there for you. 
I agree thank God for the rocks we call our husbands, squishy as they may be : )
Welcome to our family, we're here for you!
Liz

http://anausa.org/forum/index.php?topic=12217.0
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Brewers7

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Re: New member says Hi!
« Reply #17 on: November 16, 2010, 02:20:39 pm »
Mandy,
Welcome and prayers from Mississippi.  Susan
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

6pick

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  • Light a candle rather than curse the darkness.
Re: New member says Hi!
« Reply #18 on: November 18, 2010, 11:47:41 am »
Mandy, welcome.

I would have liked to welcome you sooner but I was pretty out of touch and neck deep in some personal business.

So, welcome to our club, glad to meet you, sorry it's under these circumstances. Finding this forum was a huge relief for me in the way I see it's becoming for you: finding others who "get it". As others have said before, rant, rave, cry, whine, but be sure to laugh, smile, joke and understand that your life has changed - not necessarily for the worst - just changed.

The only other advice I'd throw out at this time is be sure you check out all of your options.

Mark
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5/21/10 diagnosis: Left side AN: size 25X17; tinnitus with variable volume, garbled word recognition, disequilibrium.

10/11/10 CK treatment@Stanford; Drs. Chang, Gibbs, Lieberson size 25 x 20 x 15 mm

4/24/12 size 23 X 20 X 15 no hearing change
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