Miss CC
So sorry to hear of your setbacks
Great suggestions from everyone. I just wanted to chime in and say "Don't give up!" 17 months is still early, and it could take years to get control of all your post op symptoms so that you can enjoy life to some degree.
My heart goes out to you. Continue to post more specifics about your surgery if possible. Did you have Translab, retro, or mid fossa?
It is a part time job for me personally to get things back to my "new normal" and sounds like will be a full time job for you.
I spend half my life at the different doctors, but my issues are all face/eye related, due to the facial nerve cut. With my facial paralysis, I would get lots of sympathy stares from folks (that's on the mend now with recent surgery
)
What is soooo hard for us is that people can not
see how we feel inside.I become more isolated and socially retreat because sometimes it is just too much effort for me (I have severe tinnitus/deafness-but am getting the BAHA this week.....see it it still a job for me, 4+ years post surgery)
People don't understand the balance/equilibrium/sensory overload thing, and YOU have more on top of THAT (headaches
)
Continue posting- there are sooo many people out there who can relate. If you go to the search section and type in, let's say....BALANCE or VERTIGO, you may read some other stories.
On the side, I live near Seattle, and the surgeon Dr. Jay Rubenstein at UW in SEATTLE just performed some surgery where they implant a sort of device for vertigo somewhere behind the ear, kind of like a pacemaker for vertigo. I found this very interesting. He is also working on some sort of implant for tinnitus. He is brilliant. Was an engineer before he became a surgeon
He actually performed my second surgery. (12/7 transposition). I am keeping my eyes on him! It is just an ongoing goal of mine to continue to feel better, but it is hard work, and gets depressing for sure. It's like a rollercoaster ride. Optimism, followed by discouragement, followed by some depression. Then kicking myself to get going again.
Okay enough rambling, I didn't address the balance, but I
feel for you, and we are here to support you. Keep at it, one day at a time.. Life WILL get better. Stay POS
Maureen