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Author Topic: Little victories  (Read 4718 times)

saralynn143

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Little victories
« on: August 10, 2009, 10:04:50 pm »
After a gruelling morning, in which I had to leave my son, who was getting his braces put on, at the orthodontist while running my daughter to the salon to get her hair cut before her surgery tomorrow, and later in the afternoon had to juggle doctor and physical therapy appointments for said daughter because EVERYBODY EXCEPT ME was running late, I decided to relax with a well-deserved glass of wine.

Six weeks or so ago I had to stop having a glass of wine in the evening because I began drooling again after a long period of doing fine drinking from a glass and I just cannot adapt to drinking wine through a drinking straw. Most discouraging.

I am happy to report that tonight I enjoyed a smooth-bodied French Cabernet-Merlot in a simple yet elegant stemmed wine glass.

These little victories are just the best.

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

sgerrard

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Re: Little victories
« Reply #1 on: August 11, 2009, 12:34:46 am »
Cheers!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jeanlea

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Re: Little victories
« Reply #2 on: August 11, 2009, 07:51:36 am »
Congrats to you!!
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Jim Scott

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Re: Little victories
« Reply #3 on: August 11, 2009, 08:08:54 am »
Sara ~

Congratulations!  Not only for being able to enjoy a well-deserved glass of wine again, but for having the discernment to appreciate that as the victory it is for you.

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kaybo

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Re: Little victories
« Reply #4 on: August 11, 2009, 09:44:26 am »
YEA!!  I'll have a glass with you in Chicago!!   ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

4cm in Pacific Northwest

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Re: Little victories
« Reply #5 on: August 11, 2009, 11:55:16 am »
Quote from: saralynn143 on August 10, 2009, 10:04:50 pm

I am happy to report that tonight I enjoyed a smooth-bodied French Cabernet-Merlot in a simple yet elegant stemmed wine glass.



Oh I am SOOH jealous. That was my favorite. But now sulfates and me do not hit it off and the truth is some berries and grapes I still cannot stand the taste of- being that I did not get 100% recovery of the facial nerve- affecting my taste buds.

Nevertheless I am very happy for you.

Cheers (with caramel latte in hand)

DHM

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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Debbi

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Re: Little victories
« Reply #6 on: August 11, 2009, 03:30:53 pm »
Salute, SaraLynn! 

You are right about the straw being a bit of a mood-killer when it comes to wine, but I count my blessings every day that I still enjoy the taste of a lovely, beefy red wine (even if a bit of it finds its way to my chin all too often!)  ;)

See you in Chicago.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

saralynn143

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Re: Little victories
« Reply #7 on: August 11, 2009, 03:57:09 pm »
Quote from: Kaybo on August 11, 2009, 09:44:26 am
YEA!!  I'll have a glass with you in Chicago!!   ;D

K

It's a date.

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

epodjn

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Re: Little victories
« Reply #8 on: August 12, 2009, 04:36:45 pm »
Why is it that so many of us have that problem? Just when we seem to be drinking from a glass just fine we start dribbling again. I feel like I'm on a roller coaster lately and never know or trust my drink from a glass. Some days I do ok, some days I feel like I'm starting all over. Does this ever end??
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Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

mimoore

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Re: Little victories
« Reply #9 on: August 13, 2009, 10:09:59 am »
'clink' cheers to you! Life is good and we have much to celebrate my friend!
Hugs Michelle  ;)
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.
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