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Author Topic: 1 year follow up  (Read 2993 times)

Patch

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1 year follow up
« on: July 29, 2008, 09:36:36 am »
         Well, I got to meet with the doctor today and he said that my MRI has show from a year ago, the AN went down from 17 mm to 14 mm.  :) I don't need to see him again until next July when I get my yearly MRI. Hope news is even better.

         He said I would also ned a hearing exam to check the status of that but dont need a hearing aid as of yet. Hearing is still good but I can notice a difference.

         The only problem I have had is headache, but thats not on my AN side. Has anyone had similiar experience? Its usually sharp pain in temple area and sometimes behind the eye.


Patch
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Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

sgerrard

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Re: 1 year follow up
« Reply #1 on: July 29, 2008, 09:47:36 am »
Back down to 14mm? Ooh, that's good.  8)

Even better that you don't need a hearing aid so far.

Like you, I hope next year's result is even better.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Patch

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Re: 1 year follow up
« Reply #2 on: July 29, 2008, 09:51:06 am »
DR. said it was 17mm at time of radiation and its down to 14. Good I guess. He said 1 other of his person is at her 5 year mark and hers is down from 14mm to 8 mm. good sign.
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Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

Jim Scott

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Re: 1 year follow up
« Reply #3 on: July 29, 2008, 12:59:58 pm »
Patch:

Congratulations on your positive MRI!  Tumor shrinkage is the goal and you're obviously achieving it.  You don't have SSD, either?  Very good news - and may it continue in the months and years ahead.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

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Re: 1 year follow up
« Reply #4 on: July 29, 2008, 09:07:46 pm »
Congrats on the positive results of the MRI.  I have my 1 year MRI in April/May (that seems so far away!).  They think they got all of it, but I won't know for sure until MUCH later with the MRI.  Congrats on the shrinkage and lack of hearing loss! 

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: 1 year follow up
« Reply #5 on: July 29, 2008, 09:13:35 pm »
Patch -

excellent news!  Thanks for sharing it.

I wish I had some input on your headache issue, but I don't.  I'm hoping someone else will.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Patch

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Re: 1 year follow up
« Reply #6 on: July 29, 2008, 10:21:43 pm »
Thank you everyone for your reply. All information is helpful
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Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.
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