Author Topic: Any Old Schoolers Still Around?  (Read 5175 times)

mindyandy

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Any Old Schoolers Still Around?
« on: July 22, 2024, 12:28:00 pm »
Hello, I just wanted to chime in and say hello. Looking around to see if I recognize anyone from years ago. I was dx in 2017, I was 29 then. I was just thinking of those that helped me thru my journey. I cannot remember all the names but I would if I were to see them.  I still often pop in here and look around. I see most posts on the FB groups.
Hope everyone is doing well
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

hamshana

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Re: Any Old Schoolers Still Around?
« Reply #1 on: September 06, 2025, 12:11:01 pm »
Hi, glad you decided to stop by again. It’s always good to see familiar names resurface, even if it’s just for a quick check-in. I know exactly what you mean about remembering people by their usernames and stories more than their real names — so many helped me too in ways they probably don’t even realize.

The FB groups have definitely gotten more active, but I still find value in this forum, especially because the old posts are like a living archive of everyone’s journeys. I hope you’re doing well since your 2017 diagnosis — it’s encouraging to see people come back years later and still be connected.