Author Topic: Post Radiosurgery Headaches? When did they start?  (Read 5396 times)

Nannybee

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Post Radiosurgery Headaches? When did they start?
« on: July 03, 2013, 09:23:38 pm »
My Radiosurgery was on April 26 and have had increasing headache frequency since, but very bad and constant for the past 4 days. Ibuprofen, Excedrin, Tylenol, Percocet, ice, sleep, nothing is touching it.
They warned me about swelling after treatment and to call if any changes in headache character or frequency, so I guess this is it.
My neurosurgeon is out of town, so I'll be seeing the radiation oncologist on Friday. I have a feeling steroids are in my future. ( I also have the meningiomas taking up space inside my skull too )
Anyone have similar experience post radiation and how was the steroid treatment?
Thanks so much.
AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

nftwoed

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Re: Post Radiosurgery Headaches? When did they start?
« Reply #1 on: July 10, 2013, 11:26:19 pm »
Hi
   No Tx, but steroid leaves many wired. I don't know the size or location of your AN, but hydrocepholous is another possibility. Do you have a temp?
   One thing about long term pain relievers used regularly is the potential for a rebound pain effect between doses.

robinb

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Re: Post Radiosurgery Headaches? When did they start?
« Reply #2 on: July 11, 2013, 01:22:44 pm »
I had no problems w/steroid rounds I have taken, except initially get a little wired as the dosage ramps up.
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

Gloria Nailor

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Re: Post Radiosurgery Headaches? When did they start?
« Reply #3 on: April 28, 2014, 07:05:20 pm »
Hello there, I am ten months post GK and having daily headaches and migraines, I am just reading through old posts and wondered how your headaches are doing?  did they resolve? I hope so.....
4/2011 diagnosed with 3 cm AN on right side
6/15/2011 retrosigmoid craniotomy which resulted in SSD, severe facial paralysis
7/2011 gold weight placed right eye lid
5/2012 tarsorrpapny right eye
6/2012 woke up with a smile
1/2013 cranioplasty because a screw came out of my head!
6-7/13 regrowth, GK