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Author Topic: 5 and half year MRI - clean!!!  (Read 4663 times)

jerseygirl

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5 and half year MRI - clean!!!
« on: January 02, 2013, 03:39:39 pm »
Hello all!

I just received good news about my five and a half year MRI - IT IS CLEAN!!! I practically cried when I found out because the last thing I wanted is to deal with another regrowth of AN in the new year.

For those who do not know my story, I had an original AN removed at NYU in 1988 and the regrowth removed after 9 years of monitoring in 2007 at SBI by DR. Shahinian. Facial nerve was saved but there is some damage in that the mouth is somewhat dry on that side. All in all, it is a small price to pay given the humongous size of the original tumor.

Hopefully, my story will serve an encouragement to all newbies that no matter how big AN is, it will all turn all right at the end.

Happy New Year to all!

             Eve

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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Jim Scott

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Re: 5 and half year MRI - clean!!!
« Reply #1 on: January 02, 2013, 03:45:07 pm »
Eve ~

Please accept my congratulations on your 'clean' 5-year MRI scan results and my appreciation for posting the good news here, where it is most welcome.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

millie

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Re: 5 and half year MRI - clean!!!
« Reply #2 on: January 02, 2013, 04:12:17 pm »
Terrific news!  Thanks for the hope.
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jaylogs

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Re: 5 and half year MRI - clean!!!
« Reply #3 on: January 02, 2013, 07:11:12 pm »
Yay!!! Congrats Eve!!  A peace of mind is surely worth its weight in gold, isn't it? And thank you for the positive message to all those who are just now looking into all things AN, I am sure someone will benefit from it!!! Thanks for sharing your story!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

mk

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Re: 5 and half year MRI - clean!!!
« Reply #4 on: January 02, 2013, 07:38:31 pm »
Eve,

congratulations I am so happy for you. What a great way to start the new year!

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

jerseygirl

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Re: 5 and half year MRI - clean!!!
« Reply #5 on: January 02, 2013, 08:53:42 pm »
Thank you, everybody, for good wishes. My mood is different now: I am jumping with joy! All this celebration means that I won't be able to get any sleep tonight but it is certainly worth it. This #$#%Q% thing ruled most of my adult life. Is it over? It is hard to say so definitively but this MRI is so encouraging!

                Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

grammyslim

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Re: 5 and half year MRI - clean!!!
« Reply #6 on: January 02, 2013, 09:43:59 pm »
Great news - enjoy your party.
6 mos since treatment - know I will have a great outcome.

Congrats
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1.4 cm diagnosed 01/12
significant hearing loss rt side
total balance loss rt side - AN side -
left side already compensated (who knew)
Radiation completed May 2012 - all systems are GO -- so happy I chose radiation near home.

leapyrtwins

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Re: 5 and half year MRI - clean!!!
« Reply #7 on: January 05, 2013, 06:34:36 pm »
Eve -

excellent way to start the New Year! 

Congrats!!!!   ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

It is what it is

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Re: 5 and half year MRI - clean!!!
« Reply #8 on: January 22, 2013, 11:37:18 pm »
Hurray!!!!  Congratulations!!!  Thanks for sharing your great news with us.
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

ppearl214

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Re: 5 and half year MRI - clean!!!
« Reply #9 on: January 23, 2013, 05:51:06 am »
Eve,
What Jan said! :D

CONGRATS!
Phyl

Quote from: leapyrtwins on January 05, 2013, 06:34:36 pm
Eve -

excellent way to start the New Year! 

Congrats!!!!   ;D

Jan
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

PamJ

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Re: 5 and half year MRI - clean!!!
« Reply #10 on: January 26, 2013, 09:27:40 am »
Sending congratulations over from the UK xx
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March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

mikechinnock

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Re: 5 and half year MRI - clean!!!
« Reply #11 on: January 29, 2013, 09:47:40 am »
Outstanding ! I find good news, such as yours, always emotionally uplifting. Your tumor appears to have been pretty large and the nerves involved was quite extensive, yet your facial nerve was not sacrificed. Miracles do happen. Thank you for sharing.
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In the valley of the blind, the one eyed man is king.
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