Author Topic: 3 years after CK and all is well  (Read 3045 times)

goinbatty

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3 years after CK and all is well
« on: July 11, 2011, 06:21:08 am »
Sorry to say I haven't been on here in a long time.  Just wanted to update you all.  I'm about 3.5 yrs post CK now and all is well.  Tinnitus a bit worse but tolerable.  Hearing on AN side, in low normal range.  No complaints.  Just loads of other life stressors going on right now.  Hoping things will calm down but it's not likely to happen any time soon.  I'm considering going 2 years before repeating the MRI but will just wait until next year to see how things are going with the alien in my noggin.
Take care,
Sandra
1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

Jim Scott

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Re: 3 years after CK and all is well
« Reply #1 on: July 11, 2011, 03:23:05 pm »
Hi, Sandra ~

Welcome back!  Thanks for the excellent update on your recovery and busy post-CK life.  I wish you continued good news.  :)

Jim

4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: 3 years after CK and all is well
« Reply #2 on: July 13, 2011, 04:49:27 am »
Sandra!!!!!!!!!!!!!!!!!!!!!!!  :-*  :-*  :-*

You have been SOOOOO missed!

MAJOR congrats to you on this update and thanks for letting us know.  Continued hugglez to ya and wow...... 3 yrs.... seems like yesterday, don't it? :)

xo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Vivian B.

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Re: 3 years after CK and all is well
« Reply #3 on: September 02, 2011, 10:11:05 pm »
Hi Sandra,

Great news. Sounds like most of us who had radiation have experienced the same things. All worth it when the tumor is stable.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.