Kathy .....
ANs are technically vestibular schwannomas (see
http://en.wikipedia.org/wiki/Vestibular_schwannoma) that begin growing when the cells of the outside covering of the vestibular (balance) nerve begin to multiply into a tumor. Since the nerve is inside the tumor then, the nerve has to come out to completely remove the tumor. Even if you have radiation therapy for treatment, the vestibular nerve is usually damaged from the tumor. As you have stated, normally the vestibular nerve on the non-AN side takes over when the AN side one is removed.
It sounds like your non-AN side vestibular nerve is not taking over. However, all is not lost since we have three systems to help us maintain balance: vestibular nerves, vision, and sensory-neuro (muscles, nerves, etc. in our legs giving our brains the necessary feedback). The issue now is for you to strengthen your visual and sensory-neural responses.
I have no functioning vestibular nerves due to brain surgeries on both sides. After the second surgery (the AN removal), I was sent to a trained vestibular therapist (quite different from a physical therapist) and spent many months working with him, as well as doing a home program. Initially after surgery I used a walker, graduated to a cane or someone's arm, then finally on my own power. My surgery was two years ago last February and I am aware of my balance issues when walking most of the time, but I have learned to instinctively maintain my focus on a stable object when walking. I always try to stay to the wall side of a room, or at least near something solid to grab, if needed. My friends and family all joke with me about my swagger and are watchful if I seem unsteadier than usual. I have learned to ask for assistance if I need to walk outside after dark. Interestingly, I have no problem driving in the dark ..... just walking.
Overall, it does not majorly change my lifestyle, at this point.
You mentioned being sent to a Balance Center, so I hope that means you have had therapy with a trained vestibular therapist. Initially I went to a physical therapist with vestibular training and there was a world of difference between the approaches of the two. The vestibular therapist did all the things I needed to strengthen me, as well as enable me to regain my confidence.
Although I am a retired teacher, I feel like I am physically strong enough that I
could go back now.
Best thoughts. PM me if you have any other questions.
Clarice