Gretchen
I have a friend that was diagnosed with Cushings disease, which is pituitary gland disfunction I believe, after an MRI a tumor was discovered on her pituitary gland. She had experience with Dr.'s Rock and Seidman because she had worked for them. She changed her insurance plan so she could have them operate. They went through her nose and totally resected her tumor. It was amazing to see her recover, she lost almost 100 lbs in one year. She contacted Dr. Rock for me and he said he would be glad to see me for my Acoustic Neuroma. After much research I learned that although they are very good physicians there speciality is not Acoustic Neuromas. You really want an ENT surgeon that specializes in your particular tumor type.
I would suggest several opinions. Michigan Ear Institute in Southfield I believe does the most, Dr. Katrush heading up the team. Also Dr. Telian at U of M has much experience. Also I would say to make sure you send your films to House Ear Clinic in California.
They are the most experienced in the country and give free phone consults. I found them to be an amazing resource. The number and address can be found on their website. They get back with you right away.
I hope this helps you can certainly send me a personal message, give me your # and I would be happy to chat with you.
Good Luck, Sue