Recent Posts

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21
Hearing Issues / Tinnitus
« Last post by mwatto on April 17, 2025, 08:43:43 pm »
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Eye Issues / Re: Dry Eye Success Story
« Last post by lifeonlease on April 17, 2025, 10:28:37 am »
Thanks shelocoF

The insight (pun intended) I perceive here is that drops in the eye distribute much more effectively if the impaired eye lid is then held down, and the good eye is kept open while I move it up, down, left, right and around.  The impaired eye moves in sync and seems to do a better job of clearing the film that gathers under that eyelid.  It's a great tactic; is there anything I'm missing?  What eye drops do you recommend?
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Pre-Treatment Options / Re: Holisitc Treatment
« Last post by stevehernes on April 17, 2025, 08:48:56 am »
Love this holistic approach! I think our eating habits and fitness have a huge influence on our health in general. That’s why I try to order my food from paleovalley — they really focus on quality ingredients and clean nutrition, which makes a difference. It’s not just about looking good, but feeling balanced and energized throughout the day. Plus, supporting brands that are transparent about their sourcing and values always feels like a win. I’ve noticed I feel better when I fuel my body with real, nutrient-dense food.
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Pre-Treatment Options / Re: supplements?
« Last post by stevehernes on April 17, 2025, 08:45:02 am »
Also very curious about that. Anyone taking? I recently discovered omega xl and now I’m thinking of ordering some vitamins and supplements to support my health better. It’s amazing how much of a difference the right nutrients can make, especially when life gets hectic and it’s hard to maintain a perfect diet. If anyone has recommendations for daily essentials or routines, I’d love to hear what works for you
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Pre-Treatment Options / Re: Mind-body medicine and healing
« Last post by stevehernes on April 17, 2025, 08:39:59 am »
Are you still doing it? Mind-body medicine has always been fascinating to me too. That’s actually what led me to discover BetterMe — I came across their service while looking into more holistic approaches to health and fitness. Here's a link I found with some reviews https://better-me-fitness.pissedconsumer.com/review.html. I really believe that staying active, both mentally and physically, can help us avoid so many problems down the road. It’s not just about staying in shape, but also keeping stress in check and feeling balanced overall
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Physicians / Re: Kaiser Redwood City vs. Stanford and UCSF
« Last post by firmtactless on April 14, 2025, 10:38:40 pm »
Hey, welcome! I was in a similar spot a couple years ago with a 3cm AN and also had care through Kaiser. I ended up going with UCSF for surgery and had a great experience — very thorough team and felt super confident in their care.Kaiser’s advantage is that it’s streamlined and everything is in-network, but depending on the surgeon, experiences can really vary. If you’re open to switching, it’s definitely worth consulting with both UCSF and Stanford just to get a full picture. Hopefully others chime in with recent experiences too! Wishing you all the best — you’re not alone in this!  ;)
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Inquiries / Re: CORONARY ARTERY DISEASE
« Last post by GuyGilbert on April 14, 2025, 09:40:28 pm »
I also wonder
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AN Research / VS and virus association
« Last post by mwatto on April 14, 2025, 08:00:38 pm »
An interesting 2023 article I read today https://pmc.ncbi.nlm.nih.gov/articles/PMC10185587/
I did wonder. But it seems that the immune theory makes more sense with VS being a wound response.
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I take supplements based on my understanding of what drives AN progression biologically. So I target these pathways: CXCR4, MAPK, COX2, VEGF, PAK1/AKT/mTOR, The NLRP3 inflammasome (involved in hearing damage). After watching a recent video in the Webinar library I am also now aware of TAMs and reading up on that. I choose supps after googling the way they inhibit these pathways and VS. I do short courses of helpful supplements that include: berberine, melatonin, fisetin, D3K2, sulforapane, CBD/CBN, curcumin, astaxanthin, palmitoylethanomide, fucoidan, magnesium, taurine, blueberry extract, SPM resolvins etc. I would like to add that diet is important  as is keeping stress down and prioritising sleep, light exercise, keeping weight and blood sugar and lipids under control. Supplements have their place but fillers eg can be bad for the gut so I am very careful to choose well researched brands and not take too many supplements at a time. Just as important as the brain is taking care of liver, kidneys, heart, gut, lymphatic (and glymphatic) systems.
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For those in the 'watch and wait' status / Re: Symptoms that are not the "NORM"
« Last post by mwatto on April 14, 2025, 07:33:17 pm »
An earache was my only presenting symptom and I still get bad earache 6 years post treatment. No evidence why as there is no compression and I dont have significant hearing loss. Possibly raised pressure in that ear as its worse lying down. MRI revealed no irritation of the nerves (facial or trigeminal).
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