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AN Issues / Re: Newly diagnosed with vestibular schwannoma . ..
« Last post by Mark F. on January 20, 2026, 10:19:08 AM »Couple things. First welcome to club nobody wants to be in. To answer a few of your questions, I had vertigo bad, balance was terrible. I work as an electrician and I actually fell of the ladder a couple times. Do not accept that this how life will be. Your first step is to determine if it's growing or not. If it's not growing you would probably benefit quite a bit from Vestibular therapy. I didn't because growth made it a constantly changing target. If it is growing or symptoms keep changing then you need to do something, it is only a matter of time until you hurt yourself from a fall. I also developed swallowing problems, so choking became a real concern. Now what you do is entirely up to you. I did the surgery, Dan on here did the radiation. We both had great results. Do your research, weigh the side effects and pick which is most comfortable for you and stick with it. Don't let anyone, even the doctors, change the direction you want to go in. You didn't mention age or activity level. But I will tell you the best thing I did was stay as active as possible. I was a runner and I ran as long as I could, and when my balance didn't allow for it outside, I used a treadmill with handrails, and when it got to where that was even a problem, I walked a lot. I truly believe that staying active helps with the recovery process dramatically. 6 months after my surgery I running a 5k again and I was 56 years old. You are in the scary part right now. Right after diagnosis, all the uncertainty and stress. It does take a toll on your mental health as well. Focus as much as possible on what you can still do and not on what you can't.

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. Has anyone found anything to be helpful? I read that anecdotally, castor oil has helped some people with tinnitus. Has anyone had experience with that?