Thanks Mark! Glad to hear you're back to crushing 5ks already.

I also have a weird taste in my mouth on the AN side post surgery that comes and goes, seems to be pretty "common" from what I've read on here as apparently the AN is generally located near some taste receptors in your brain. I can't do anything too artificial tasting currently with the taste being off.

Hi All,

I completed my translab surgery on October 28 w/ Dr. Lee & Dr. Barker @ MGH. The surgery was as much of a success as possible, full tumor removal with full facial function intact. My hearing in my AN ear was already so bad that getting used to the SSD in quieter environments feels pretty comfortable, and I'm slowly bringing back music into my life. My balance is slowly but surely coming back, and I'm going on unassisted, slow walks for an hour at a time already. Still feel pretty unstable, but I know that it'll be sometime before I fully get that stabilization back.

The one thing that has been bothering me though is a strange symptom. Every night, my AN ear will become red and a bit hot to the touch for a few hours and then return to normal. I'm now off steroids and other prescribed meds so they don't seem to be the direct cause. I've had some extensive conversations w/ the team @ MGH about this and they're unsure of the cause, but are not concerned given the lack of other infection symptoms (fever, confusion, etc.) and the fact that it goes away relatively quickly. I have an appointment with my PCP per the MGH team's recommendation next week as I don't live in Boston to cover all my bases on possible causes.

Has anyone else experienced this post surgery? Looking to find any insight into this, thanks

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I removed the entire tumor and its size was 5 centimeters and I was paralyzed in my left face and after 10 months the corner of the mouth began to move and now it is 11 months of operation and the smile from the corner of the mouth moves 1 centimeter or a little more, is there an improvement in the coming months or does the improvement depend on these simple results?

Hi Jackysue,

The Foundation is a separate organization. A quick internet search will give you the contact information for the physician you are looking for.

Please reach out if we can be of assistance. 

Best regards,

The ANA Team
melanie@anausa.org