Recent Posts

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AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on June 07, 2025, 10:36:05 am »
Brittany,
I'm happy to share/answer any questions.   I did get your email and sent a reply back, hope you got it, and hope all goes well with your journey.  I am pleased with my experience at Hopkins, and for anyone else wondering if there are positive results from surgery, absolutely there are.   Everyone has a different experience, and I can only tell you from my experience.   Before surgery I had a headache that lasted 2 years.  It was there every single day.  But since surgery that headache has vanished.   I never realized how much that affected my daily life till it was gone.   I had other issues as well, and I'm still recovering from some things, but just having that daily headache disappear was worth going through the surgery for me. 
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Post-Treatment / Re: Update on post treatment
« Last post by mwatto on June 07, 2025, 12:03:42 am »
Really happy for you Moselle! A big relief for you. Its always reassuring to see progress.
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Post-Treatment / Update on post treatment
« Last post by Moselle on June 06, 2025, 09:22:11 pm »
My latest MRi shows unchanged size of radiated tumor.  The report was very good. 
4/10/22. 8mm x 16 mm
4/24/23. 9mm x 17 mm
After treatment
11/3/24. 12 mm x 21mm
5/3/24. 11mm x 17 mm
12/12/24. 10 mm x 14 mm
6/2/25.    10 mm x 14 mm
I also had a MRA cause on the 12/12/24 MRI it showed signs of a possible stroke.  But on 6/2/25 everything looked good and no sign.  I’m happy . 
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AN Issues / Re: New member, symptoms questions.
« Last post by OliviaReyes on June 06, 2025, 02:40:10 pm »
Hello everyone,

I’m interested in understanding how effective current migraine treatments are not just in relieving pain but also in managing other symptoms and improving quality of life. Migraines can affect so many aspects beyond headache intensity, including nausea, sensitivity to light, and cognitive function.

What treatments have you found to address these broader symptoms effectively?

Are there any promising new approaches or combination therapies?

How do you measure success in migraine management beyond just pain reduction?

I’d appreciate insights from both clinicians and patients about what really works in comprehensive migraine care.

Thank you!
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AN Issues / Re: New member, symptoms questions.
« Last post by bsch on June 06, 2025, 08:44:41 am »
This is great news!  I am new here, and was just diagnosed.  I've read all your posts, and also live in Maryland.  I would love to hear more about your JH experience if you would be willing to share!

Brittany
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For those in the 'watch and wait' status / Re: Suggestions for headache reasons and relief
« Last post by greenamw on June 05, 2025, 04:30:29 pm »
I’ve had on-and-off pain around the temple and behind one eye from stress and what my doc called tension-type headaches. Nothing too sharp, but the kind that lingers and just messes with your day. What’s worked for me is not just treating the pain, but reducing the triggers. Light exercise really helps me too, kind of like what you mentioned, especially walking or even gentle cycling. Also, I’ve had success with doing breathing exercises and getting occasional deep tissue massage.
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Eye Issues / Re: Dry Eye Success Story
« Last post by greenamw on June 05, 2025, 04:26:26 pm »
Yeah, I actually tried a similar eyelid-rolling trick too and was surprised how much it improved the way drops worked. For me, using lubricating gel drops before bed helped the most since they stay longer on the eye surface. During the day, I use preservative-free artificial tears. But honestly, everyone's case is different, so what works for one might not help another much.
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Inquiries / Re: Due an MRI
« Last post by Karin Mauro on June 05, 2025, 03:13:20 pm »
I’m sorry for your balance issues. Have you had the MRI yet?
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AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on June 04, 2025, 04:31:42 pm »
Three weeks post-op and just returned to work today.  Only did 4 hours because  I started getting tired and didn't want to overdo it.   But I was really happy to get back out there even if it's just half a day.  Had video follow up today, and surgeon was very pleased with my progress and cleared me to drive and light work.
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AN Issues / Re: Scalp burning after mri
« Last post by CelineJulia on June 04, 2025, 04:59:17 am »
This also happened to me. Did you have a CT scan with contrast sometime before the MRI? I did and I think it might be related to that. Was the MRI with contrast or without?
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