Hi all,
I have an Intralabyrinthine schwannoma which started 11 years ago when I woke up one morning with tinnitus in my right ear, my first MRI revealed a meningioma on the left side of my brain, which was unfortunate because all ENT's after that focused it even though I was going deaf in my right ear. It took 6 years of a yearly MRI for any signs of the Intralabyrinthine schwannoma to show on the scan, by which time I was profoundly deaf in my right ear. I had given up on getting any help as once they found out what it was, they deemed it too difficult to operate, and too small for the gamma knife so I just had to live with. This would been ok because thankfully my left ear is fine until I started getting dizzy, which I am now permanently. I have had vestibular physiotherapy which has not helped, I have scheduled another ENT for a second opinion which will happen in June. My question is however has anyone had to deal with something similar, does anyone know if micro surgery could be successful. As far as I understand the damage is to the nerve and not the cochlear, but I'm exactly sure about that. This it the relevant part of my last MRI.

Diffuse enhancements of the right cochlear is identified. It does not extend into the internal acoustic canal. The cochlear is not enlarged when compared to its left counterpart.

Cheers

 

It was an incidental finding. I was having some general twitching in my body likely to due anxiety so they did an MRI and found it. I have strong anxiety related to health which can manifest in symptoms. I have had some slight dizziness over the past 6 years but it has always been very subtle so I could always dismiss it. These latest events are very different, much more sudden and intense.

Well how I'm doing now just over 3 weeks from the big day is very nervous.   I tell people that everyone else seems happier about me getting surgery than I am.  Don't get me wrong, I am glad that I am finally in the end game and looking forward to seeing some things improve instead of constantly in a slow decline.  But the gladness is only one of the many feelings I have.   I'm also scared to death of the surgery, worried about the outcome, and anxious about the length of recovery time.   

Thank you for the quick reply!

I've been very anxious about the symptom. It is such a sudden and short disorientation that it scared me. It weirdly only happens when I'm sitting, primarily at my computer desk.

Hello,

Been a lurker on this forum for about 6 years and first time posting. I've been in watch and wait for 6 years and have been fortunate to not have any symptoms. I had an MRI and hearing test 1 month ago and everything is stable and normal, however, I have now developed tinnitus and over the past few days I developed these sudden short (1 second) burst of dizziness. It freaks me out every time. Sometimes it feels like I'm falling down an elevator, but it is like a flash and then gone.

Has anyone else experienced this and is this likely related to the AN?

Thank you!