Recent Posts

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11
Anthony,

Mark and I have both posted on several posts.  Basically he is very happy with his decision for surgery and I am very happy with radiation.  He is correct it is your decision and make what is best for you.

Dan
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Pre-Treatment Options / Re: CBD
« Last post by ppearl214 on June 15, 2026, 10:40:25 AM »
All,

Excellent and intriguing discussion, yet, I just want to remind everyone that sharing the website links for products is not allowed on these forums (I have removed many of the links posted in this discussion thread).  Suggestion is, if you want, to PM each other to obtain additional information.

First, always, always check with your treating physicians first as it may not be applicable to your personal situation.

Ok, I return you now back to your discussion!

Phyl
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Hello Anthony,

I usually try to check this site everyday but I missed your message as I had a busy weekend.   I am 57and I had surgery last May when I was 56.   No matter what you choose, staying in shape is your best defense.  I stayed as active as possible before surgery even when all I could do was a treadmill with hand rails because of such poor balance.   But after surgery, and after I regained my balance back I started training again, and 6 months after surgery ran a 28 minute 5k.  So your running days are far from over, and would be your best course for your recovery should you choose that option.   

Now that being said, Dan has a great result from cyber knife, so the choice for which method you go with is really up to what you find the most comfortable for you.  Weigh the options, make a decision that you think is right, and stick with it, regardless of what others think. 

I'll be glad to answer anything I can, but know you have support here no matter which direction you choose.

Mark.
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Thanks Dan. I sent you my email address in a private message.

Anthony
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Good Morning,

I was in your position several years ago and found the information over whelming.  I retired and focused on this.  My wife had another word for it "obsessed".  I updated the information about 12 months ago.  I am not a doctor but an engineer.  I simply tired to organize the information.  If you are interested in the matrix email me and I will send it along.

(Dan, for your online safety and the safety of others, I removed your personal email address. Please feel free to message others through the private message option here on the discussion forum. Thank you for your understanding. Phyllis)

Good Luck on your journey,

Dan
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Radiation / Radiosurgery / Retrosigmoid surgery vs. Gamma Knife
« Last post by amurgatroyd on June 13, 2026, 05:31:35 AM »
I was diagnosed with an acoustic neuroma a year ago. I have been offered both the Retrosigmoid surgical approach and the Gama Knife radio surgery approach. I am hoping to learn what others think the best approach may be for me given my circumstances, and what the pros and cons are for each procedure.

I am a 64 year old, but fit and in good health. I recently ran a half marathon. My acoustic neuroma measures 0.3 x 1.1 x 0.3 cm, which makes it small and under the 3cm standard where both approaches are possible.

I had a recent growth of the tumor, twice the normal growth, in a 7 month period. My symptoms are significant, but "serviceable" right sided hearing. I do get episodes of dizziness about 1 or 2 twice a month.

Thanks so much,

Anthony
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I was diagnosed with an acoustic neuroma a year ago. I have been offered both the Retrosigmoid surgical approach and the Gama Knife radio surgery approach. I am hoping to learn what others think the best approach may be for me given my circumstances, and what the pros and cons are for each procedure.

I am a 64 year old, but fit and in good health. I recently ran a half marathon. My acoustic neuroma measures 0.3 x 1.1 x 0.3 cm, which makes it small and under the 3cm standard where both approaches are possible.

I had a recent growth of the tumor, twice the normal growth, in a 7 month period. My symptoms are significant, but "serviceable" right sided hearing. I do get episodes of dizziness about 1 or 2 twice a month. 

Thanks so much,

Anthony

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Post-Treatment / Re: Yr 8 update CK
« Last post by ppearl214 on June 10, 2026, 10:44:21 AM »
Hello Michele,

Well, regardless of how you found us, you and here and one of us... and I say that in a good way! :)  Such a community here and these forums are kept as peer-to-peer so we can feel safe and happy sharing and caring with others in our shoes.  Glad you found us!

I'm not sure how the AN Community is in Australia (if my old brain remembers correctly, give or take a number of years ago....), we had some from Australia join us here. Try doing a "search" and see what crops us.

Keeping those wellness wishes coming your way!
Phyllis

How lovely of you Phyllis! Thank you! This forum has been wonderful for me emotionally- its also kind of sad that I had to join a USA org to find it as did not experience that in any way in Australia.

 I am always available also to help mentor others because I still remember vividly how terrified I was  - especially since for two years I had been told I was 'imagining' my vague symptoms and then I basically diagnosed myself from Google.

The way the MRI news was delivered to me was shocking too - a nurse called me at 8 am to say 'sorry to inform you, you have a brain tumor- please see the doctor at 5pm. No, I cant give you any more info.'  When I saw the doctor she said 'well the bad news is you were right after all- it is an AN. The good news is thats benign!'  Post treatment I did not have any real support either until I joined here. The resources also helped me a lot to recover and understand things.
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I had a neuroma surgically removed mid-November. I teach kids skiing, and was back skiing on January 1 and teaching the following week. It wasn't easy to start and I felt I'd lost some stamina from the surgery, but the season generally went well and feel balance issues more walking than skiing (it could be because skiing is more "linear" because of the downhill momentum). All that being said, although I can handle almost all terrain I'm not an aggressive skier and I'm generally not doing jumps or moguls.

I didn't discuss skiing with my docs, thinking that they might not have approved. I also went back to work 20 days post-surgery, but that was pushing it too.
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Post-Treatment / Re: Yr 8 update CK
« Last post by mwatto on June 10, 2026, 12:19:09 AM »
How lovely of you Phyllis! Thank you! This forum has been wonderful for me emotionally- its also kind of sad that I had to join a USA org to find it as did not experience that in any way in Australia.

 I am always available also to help mentor others because I still remember vividly how terrified I was  - especially since for two years I had been told I was 'imagining' my vague symptoms and then I basically diagnosed myself from Google.

The way the MRI news was delivered to me was shocking too - a nurse called me at 8 am to say 'sorry to inform you, you have a brain tumor- please see the doctor at 5pm. No, I cant give you any more info.'  When I saw the doctor she said 'well the bad news is you were right after all- it is an AN. The good news is thats benign!'  Post treatment I did not have any real support either until I joined here. The resources also helped me a lot to recover and understand things.
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