ANA Discussion Forum
General Category => AN Issues => Topic started by: MAlegant on September 17, 2008, 08:04:08 pm
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Hi all,
This is my first official (full-time) week back to work. I've never been so happy to be back at work. :D I'm doing fine, though mentally I am not quite up to speed so I'm trying to go at my own pace whilst not getting fired. Each day I feel myself getting more in the swing of things. Thankfully I work for good people in a great place so it's a very supportive environment.
Neuropathy is still with me, but doesn't bother me much until later in the day, at which point I take something for the pain and just carry on. My head still kind of feels like a hard boiled egg, but really I'm feeling pretty good. I'm getting used to the new normal and while I have some lingering physical symptoms, I have a new outlook on life and there's no question in my mind that it's worth the trade.
Friday night happy hour is my goal right now!
Hope all our friends affected by the hurricane are getting back to their version of normal.
Marci
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Congratulations, Marci! Happy Hour on Friday is an excellent goal. How's the singing and the running? Off the subect, sorry about the Browns loss Sunday. The Steelers weren't much better.
Have a good day at work tomorrow.
David
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Congratulations, Marci. Being back to work is it's own kind of special therapy for those that are lucky enough to be able to do it. It's good that you have such a supportive work place to go to. Yes, Happy Hour on Friday is a great goal. ...But the Packers won!
Have fun at work tomorrow.
Jean
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Oh man, the Browns were just killing me. I watched the whole game but was throwing things at the TV.
I am running almost every day (short 3 mile loop) and trying to increase speed, since I don't have time to increase distance all that much. I'm also lifting a bit (after a bone density test that showed that my hips aren't as strong as the rest of my bones). I'm a baby boomer. My bones will be fine as long as I keep exercising. I'll bet that test would have had a different result before surgery!
Yesterday, I sang without twitching too much and that was great, but, I did notice that my facial weakness is visible when I sing. The right side of my face (which looks normal the rest of the time) just can't do the work of the left just yet. If it stays that way I imagine I will just compensate for the weakness eventually. I am lucky to be able to sing, so I shall enjoy it. I'm trying to decide what song I'll post. For Anne Marie it really should be an Italian aria and I just have to choose one.
Ciao,
Marci
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Yeah...
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Great, Marci, thanks for sharing! You "sound" great - so positive, as so many of you that have just had surgery have sounded - ya'll are all amazing and a great influence on the _______ (almost posties, pre-treatmenters, not really newbies...).
Look forward to a song from you,
Cindy
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Congratulations Marci, I'm very happy you are back to work, running, and singing!
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Great News Marci...I will be having my first bone density test next month. I've lost one inch in the last five yrs...I try to excerise everyday but now I am determned to do it everyday (walk 5km) and be in the best shape for when I have to choose my treatment.
JO
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Congratulations Marci on the back to work milestone ;D
I remember how great it felt to return - and I remember the new outlook on life feeling; I'm thankful to say it stuck with me.
Keep up the good work!
Jan
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Marci,
Wow you are really doing well. I hope the neuropathy remains manageable, take it from me it can be brutal if it isn't. And dear surgery sister an Italian Aria would be lovely :-* I wait to hear it!
Anne Marie
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Marcie:
I was delighted to learn that you've returned to work - as well as to singing. I believe one must simply fight past the obstacles, be they fatigue, neuropathy issues or whatever. So many of our members have been doing that and while there are occasional setbacks here and there, that kind of intrepid determination usually pays big dividends in regaining physical abilities as well as strengthening one's resolve and enhancing a positive attitude, all of which can only aid in recovery. I'm positive that vocalizing is also a positive exercise. My wife and I have a family friend - a talented woman - who used to perform in off-Broadway musicals (and touring companies) in the 1970's as a singer/actress. She now teaches vocal classes as a side job (she's a full time high school teacher, today). She finds singing very relaxing and uplifting and I'm sure you do, too.
I'm pleased to read of your progress and the success you've had in regaining normalcy. If Friday night Happy Hour is your self-reward for getting through the workweek, you've certainly earned it - so enjoy! :)
Jim
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Hi Cheri,
In my case the neuropathy is from the surgery. The finicky trigeminal nerve is probably trying to recover. I'm hopeful that it will pass in time but I'm dealing with it as if it won't . That way I won't be disappointed!
Best,
Marci
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Brava, Marci! I am glad that you are doing well, and that you are back to work. It definitely helps to get back to "normal" activities.
Debbi
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I have made it to the end of week one. Happy hour never happened but the rather long nap I took made me just as happy. I think it will take some time to have self-confidence again though; I found myself struggling for words, losing my train of thought, and various other scary moments. If I do have cognitive issues, how would I go about getting tested? I'm definitely a step slower, probably not noticeable but when you're used to being the "geeky smart girl", it's scary. I am going to go run; it's a beautiful Saturday in Ohio; sunny, almost autumn, etc.
M
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Hi Marci, At the very first symposium I went to I went to one session on cognitive problems, There was no mention of doing any testing or needing to see psychologist because of it. It was one who gave the talk and he pretty much just said how you have to come up with new ways to cope with how ever you are not the same. It wasn't exactly what I was expecting to hear either.
I would say once you are over the stage of being tired easy then you should see improvement. You are not that far past surgery and the odds are you will improve in time. I am sure when we get nervous over it,makes it worse also. I have some problems also and really varies from day to day. Describing things is my worse problem.
I think the chance now of a stroke is much less now. It would be more likely during the actual time of surgery when they are in there working around the blood supply and ahead of time not knowing if something is present which would cause the stroke. Once the surgery is over and they know what the area looks like, the chances are no different than if one could be caused some day from another cause.
Hope this helps, Cheryl R
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I have made it to the end of week one.
M
Yea!!!! Milestone number one.
I remember learning that after major surgery, even though you are primarily healed at 6-8 weeks, the body can sometimes take up to six months to level out.
How long were you under during your surgery?
Kate
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Kate,
I was under for about 6 hours...
Thanks,
M
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"Happy Hour" has a totally new meaning after AN surgery, doesn't it?
Congratulations on getting through the week. I know you might have felt a little "off", but I'll bet no one else noticed. We are our own worst critics! I hope it gets easier and easier each week! And then, maybe you can make it to the REAL happy hour! ;)
Lori
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Marci:
I think this may be a matter of your expectations being a bit too high.
As someone who is 27 months post-surgery, I can assure you that your cognitive skills will be fine, even if you have to make a few minor adjustments, as I have. Just don't expect to be 100% all the time. I'm not, but I function quite well. You will too. :)
Jim
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M: I felt the same way after returning to work (8 weeks post op) also. I even told my boss I didn't think I could keep up with the workload. I luckily work with a great team, no one was expecting me to go as fast as I use to (except me). I also remember taking naps as soon as I got home, I can't remember now when I didn't need them anymore. As everyone said, you're still healing, maybe lower your expectations as I had to !! It will get easier & easier.
Always good thoughts, Nancy
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I think it will take some time to have self-confidence again though;
* Patient is cognizant of the maxim of acoustic neuroma recovery: patience in all things.
I found myself struggling for words, losing my train of thought, and various other scary moments. I'm definitely a step slower, probably not noticeable but when you're used to being the "geeky smart girl", it's scary.
* Patient is coherent and expresses insights into her own condition and the perception of it by others.
I am going to go run; it's a beautiful Saturday in Ohio; sunny, almost autumn, etc.
* Patient displays cheerful and positive attitude, and appreciation of her surroundings.
If I do have cognitive issues, how would I go about getting tested?
Conclusion: No further testing required. Patient is recovering well.
Prognosis: return to normal-ish.
Steve ;D
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Thanks all. Steve, :D :D :D :D :D :D
Marci
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Steve: your last response is eloquent, funny, & so insightful, isn't it Marci ? !
Always good thoughts, Nancy
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Yeah, I have to say that Steve's response was pretty funny, and extremely sweet. Point taken, Steve.
Marci
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Steve,
Are you a doctor? Or do you just play one on tv? :D
Lori
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Hi Marci,
Congrats on returning to work!!! Another step in your recovery! ;D ;D ;D
I am glad that I have returned to work, it helps to pass the time. I was so bored at home and stress about my face all day. I am tired and like you I am trying hard to get used to the new me. Each day I am feeling stronger and stronger. Yes I do have changes that I need to get used to (and hate ie. face, SSD, balance issues...) but all and all I feel great. I remember before surgery and discovery of my tumour having Advil in my pocket, in my desk, purse, car... it was part of me for years and being free from pain medication is kind of cool. I need to take the occasional tylenol but the pain nothing like the ice pick pain I felt before. If I get pain it is a good reminder for me to slow down, I know that sometimes I push myself too hard.
Marci my mother-in-law says this is the hurricane year (family illness). I am looking forward to 2009, I know it is going to be a better year.
"Hope all our friends affected by the hurricane are getting back to their version of normal."
Take care everyone.
Michelle ;D
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Good one Steve. Say you do look a bit like you could be a doctor.
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OK Steve...I have to say that I was reading your post and not getting the whole Dr. thing until the end...I was getting VERY concerned as I was thinking that it sounded a little "Silence of the Lambs-ish"... :o
K
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K,
You have a dark, dark sense of humour. Steve? Hannibal Lechter? Nah....
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Marci~
I had a friend in college who would quote that just to freak us out - I certainly did n't think Steve was a Hannibal but it just sounded like it the way I was reading it!! ::)
K
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Hmmmm ???
Maybe Steve isn't Steve at all, but a doctor lurking among us ;)
You never know :D
Jan
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* Well, Marci, have the lambs stopped screaming? :o
Seriously, though, the cognitive issue is a real one. I think we mostly experience a sort of disconnect between our thoughts and our mouths, but that it is not a cognitive issue, it is more a physical coordination issue. Our voices don't sound the same to us, or the mouth movements don't feel the same, and that causes some built in feedback circuit to fire and say "you are not saying this correctly" - even if you are saying it correctly. The hesitations that result can interrupt concentration or cause us to lose the rhythm, and we sometimes get stuck on a word, or lose our train of thought because of the distraction.
I still experience something like this, but I am getting more and more used to it, and it doesn't interrupt me as much. I sometimes find myself speaking, and have the odd sensation that I am saying just what I mean to say, but it doesn't quite feel like my mouth saying it. I just let the slightly alien mouth keep talking, and it turns back into my mouth a few moments later. Okay, that sounded a little weird. But my point is that it is more like an eye/hand coordination problem, except it is your hearing/voice coordination that is getting thrown off by changes in hearing or facial nerves.
I'm convinced that our minds are still working just fine. ;)
Steve
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Amen to that Steve ...
Always good thoughts, Nancy
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Hi Marci,
It sounds like you're off to a good start. I have to agree that any deficencies you percieve in yourself are probably totally missed by everyone else. You need to give yourself a break -- you had brain surgery two months ago! I'm sure your self confidence will return soon, you just need to settle in. Since I am not working right now, I wish I had that kind of distraction and am working on my resume. I am also planning to return to school part time in January and am really looking forward to it.
Sending positive vibes your way,
Wendy
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Steve the weird thing is I TOTALLY understood you! I felt like I could have wrote that.
Michelle ;D
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Steve, that is exactly right. Yes, coordination more than cognitive. Oh well. At least I'm not crazy. Or maybe I am? ;D
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Steve,
As usual you probably hit the nail right on the head for most of us. When I read posts like yours I definitely feel more normal!
Wendy