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Author Topic: 1 year CK update  (Read 9135 times)

SuzeAN

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1 year CK update
« on: November 01, 2006, 10:57:58 pm »
Hi, I don't post often but,
thought I would share my 1 year MRI update with you all.  Good news, it has gotten smaller!!  My first MRI done back in June  2005 when we discovered "it", the measurements were 15mm x 25mm x 17 mm left side and against the pons.  Had Cyberknife done in Oct 2005 at Barrows (awesome Drs Daspit, Kresl and Porter); and 6 month MRI to follow in Apr 2006. "It" measured 19mm x18mm x 19mm with some darkening in the center.  Now at 1 year Oct 2006, "it" measures 10mm x 17mm x 12mm! So I am very excited with these results, I still have to go for a hearing test, I did have slight hearing loss in that left ear and I still have tinnitus (which can be annoying at times).  Just to note, the first doctor I saw did not even consider radiation for me; I did some personal research (internet, library etc), read many posts here and found doctors that could give me unbiased recommendations for how to contend with "it".   

Thanks to all for sharing your experiences and knowledge it has been a  blessing for me.
Cheers,
Sue (Las Vegas)
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2.5 cm, left side
CK-Barrows 10/05

ppearl214

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Re: 1 year CK update
« Reply #1 on: November 02, 2006, 07:37:28 am »
Sue,

You brought me to happy tears! Congrats, congrats to you!  I love hearing all the CK success stories (you, shoegirl, Mark, etc) as it helps me to maintain mental strength as I go through this waiting period as well (next MRI in February -- 10 month post treat).

I'm feeling a celebration coming on!  Congrats to you and continued wellness!!!!!!!!!!

*jumps for joy for Sue, trips over dog*  dang it! ;)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Obita

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Re: 1 year CK update
« Reply #2 on: November 02, 2006, 07:43:58 am »
Hi Sue:

What wonderful news!!  You must be feeling like a million bucks. 

Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

BevM

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Re: 1 year CK update
« Reply #3 on: November 02, 2006, 08:13:25 am »
Thanks for your update.  This is encouraging news.  I completed my CK 10/18; so far minimal side effects (difficult to know what may be side effects and what are the normal ups and downs of the AN symtoms).  Its great to hear the reports from those of you who are farther along in post treatment.

Bev
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mellowrama

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Re: 1 year CK update
« Reply #4 on: November 02, 2006, 07:14:16 pm »
Thanks for the great news update Sue!  Go celebrate!

I had my CK at Barrows too, hope to have the same report.. :)

Melinda
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22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

Sheryl

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Re: 1 year CK update
« Reply #5 on: November 02, 2006, 08:43:16 pm »
 ;D  Suze - how absolutely wonderful.  I don't post often but just had to add my congratulations!!  You should post on the Cyberknife board as they are always interested in such a great result - www.cyberknifesupport.org.  Keep us posted and hopefully you'll continue decreasing the size of this bugger.
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

marystro

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Re: 1 year CK update
« Reply #6 on: November 02, 2006, 10:36:21 pm »
Hi Sue,

Such wonderful news!  This is so encouraging to hear such great results.  As a 3-month old postie, this is giving me hope!!!

I notice you are in Las Vegas.  Being in San Diego, I am thinking we ought to have the West Coast get together sometimes!!  I am sure many of us would love to gather in Las Vegas for a brunch like the Worcester gatherings that Phyl is organizing....   Hmmmmmm....  This is giving me ideas...   8)   Any interests from those West Coast ANers for a get together?

Mary
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Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

SuzeAN

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Re: 1 year CK update
« Reply #7 on: November 02, 2006, 11:10:32 pm »
Wow, thanks for the kind words all of you!!

Can't wait to read some more positive updates from everyone else after their followup MRI's!

Marystro, that is a good idea, a West Coast get-together, I've heard San Diego has a nice wine country hmmm....

Cheers,
Sue

(Phy..watch out for that dog!  Next time you read good news, don't jump LOL)



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2.5 cm, left side
CK-Barrows 10/05

marystro

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Re: 1 year CK update
« Reply #8 on: November 03, 2006, 08:48:02 am »
That's great!  I will start a new thread in the General Discussion for everyone to chime in for a West Coast get together.  Yes, we have great wine and many others  San Diego it is!!

Woo-hoo!!

Mary
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Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

shoegirl

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Re: 1 year CK update
« Reply #9 on: November 03, 2006, 12:04:06 pm »
Sue,

Fabulous!  I am so happy for you!  Wonderful news!   :) :) :) :) :)
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left side 2.0cm x 1.3cm  
Cyberknife - 12/2005
The Barrow Institute, Phoenix, AZ

ellenvig

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    • My AN
Re: 1 year CK update
« Reply #10 on: November 04, 2006, 11:54:35 am »
Congratulations from both me and Harry!

Ellen
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2.3cm AN diagnosed 6/13/06.
Gamma Knife 9/22/06.
Dr. Greorg Noren, Providence RI.
http://savyon.com/ellen/AN.htm
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