Author Topic: what can I expect after surgery  (Read 5671 times)

Pembo

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Re: what can I expect after surgery
« Reply #15 on: November 16, 2005, 10:36:43 am »
I had a 4 cm tumor and no hearing loss prior to surgery. The drs did retrosigmoid but once they got in there they found my tumor to be very sticky and attached to everything. As a result I lost the hearing and vestibular nerves. My facial nerve had been flattened and is still recovering 17 months later.  It was also pushing on the brainstem.

My hair was shaved underneath. It looked as if it was layered unevenly. My hairdresser thinned out the other side a little and it looked fine. I had highlights a month before surgery (didn't know about it yet) and all the color fell out of my hair post surgery. The hairdresser gave me some clarifying shampoo that takes all the anesthesia out of your hair and made it soft again.

As for the facial paralysis, Lamar, it is frustrating. I try to spend as little time in front of mirror as possible. My smile has returned and gets better everyday. It just takes time.

Waking up with ssd was quite an experience. First I always thought the ac was running, that's how my tinnitus began. It does take some adjusting to but you really do adjust. In 2 weeks I'll be getting by Baha processor. I've read on these boards of people who had the implant done when they had their an surgery. See if that's an option for you.

I had my surgery in Cleveland Ohio. My surgeon said he does 10-15 An's a year. I thought that was alot until I learned of House on these boards. I'm very pleased with my surgeon. All of my tumor was removed and for the most part I'm fine.

Please email me if you have any more questions.

And Trudy-my surgeons offered me "something" for those weeks before surgery to calm my nerves. Just ask. :)

Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

trudy

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Re: what can I expect after surgery
« Reply #16 on: November 16, 2005, 02:05:26 pm »
Pembo,
Thanks for the reply - too bad you had such problems.  You said the
facial nerve was flattened - what kind of symptoms did that present?
The hair coloring thing is kinda wierd - the coloring fell out of your
hair?  My entire hair is colored - not just highlighting.  Is this from
something they use?  What do you mean "waking up with ssd"?
I'll be anxious to hear your thoughts on the Baha. I am still hoping
that my hearing can be preserved. I had called the Dr's office in
Phila and they told me to contact my regular Dr. I went the other
day and they gave me a script for something mild to use short-term
that will take the edge off.  I have only been taking it a couple of
days and it seems to be ok.  How soon do they know that you won't
have any hearing - is that something you can pre-plan for and have
the baha implant at surgery time?  Trudy

trudy

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Re: what can I expect after surgery
« Reply #17 on: November 16, 2005, 02:13:52 pm »
To Battyprincess,
I had not hear anyone else on this site complain about the light
sensitivity after surgery.  My husband and I are going to Phila to
a teaching hospital and I feel confident with the two surgeons.
Will you be trying to get a Baha?  Does anyone know how much
the cost of one is?  I know there is the cost of surgery and then
the unit - but what does the whole thing run?  I'm not sure that
my health carrier would pay. I am lucky that my husband will be
with me the whole time and we work together and ride together
also as I'm not sure how soon I will feel like I can drive by myself
or go off shopping by myself which is what I like to do now.  I
don't have a surgeon locally - just my regular Dr - but he is
helpful and if I have to I will have to run back to Phila. I treadmill
everyday for exercise to keep my weight in check and am wondering how I'm going to make out in the future -   Trudy