General Category > AN Issues
Hurt
sgerrard:
Tammy, you are quite a remarkable person. I can't imagine going through all that, or even one tenth of all that. But you have managed to persevere and be a productive person, despite it all. It is really in the end an inspiring story, even with that grisly beginning.
I hope you get a chance to pursue some or all of the medical treatments that could help with the facial nerve or the neck crater. Even more, I hope to hear from you here from time to time, whenever you feel the need to unload some of that burden. You are a real person, very much alive on the inside, and you matter a great deal to all of us.
All the best, Steve
Betsy:
Hi Tammy,
I remember reading something awhile back about Arnot Ogden Hospital having trouble recruiting and keeping doctors. Binghamton too; when I was considering surgery, I tried to find an experienced AN doctor in Binghamton (my mother and sister live near there), but couldn't find one. I'm still pre-treatment so I can't speak from experience, but I do know that follow-up care is critical. So far, I've been very impressed with Geisinger in Danville PA (south from Elmira, maybe 100 miles). It's out in the country, but the facility is huge and there are doctors there who are experienced in treating AN patients. Let me know if you'd like more info. You shouldn't have to suffer.
I admire you for staying so active and involved, although it's obviously difficult for you. It's hard to keep strong emotions inside; I'm glad you found this forum and shared your story with us. Please post again whenever you want....you have friends here.
Betsy
Obita:
I am bumping this up hoping someone can help squirrellee find a doctor in her area for follow up care. Maybe Rochester or Buffalo NY?
Kathy
linnilue:
There is a neurosurgeon in Albany, NY by the name of Dr. Timothy Lovely. He operated on my best friend who had a huge (lemon size, frontal lobe) menengioma last December. His office is near st. Peter's Hospital and that's whee he operates. She was out of ICU in 24 hours never had one single setback and was back to work in 4 weeks. Her only lingering issue is fatigue but even that isn't too bad. She was very pleased with him and I know he operates on acoustics. She was so lucky because he told her that she might have a very long recovery which she didn't. It might be worth a consult. I know I wouldn't hesitate to have a conversation with him. Good Luck, Holly
Obita:
Tammy:
How about Cornell University? That can't be too far from you. I know I have seen this doctor mentioned
on the forum. http://www.cornellphysicians.com/samuelselesnick/index.html
Kathy
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