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Author Topic: It shrunk (said as I'm tap dancing)!  (Read 3202 times)

Tisha

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It shrunk (said as I'm tap dancing)!
« on: May 04, 2011, 10:10:55 am »
Well, my 2 year MRI shows that it has shrunk in one year to a size slightly smaller than pre-CK.  At 12/09 it was 1.8 X 1.3.  In Feb 2011, it's 1.5 x 1.0.  (preCK it was 1.6 X 1.1)  I really think the nystagmus this past year might have been caused by all the moving and shrinking of the tumor on the nerve.  I haven't had an attack since the end of January, just a little weird feeling a couple of weeks ago.  Valium and Dramaminie stopped it before the attack and I've been fine ever since.  I tell you...it was such great news to hear from Stanford last week!  Just thought I'd share.  Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

cindyj

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Re: It shrunk (said as I'm tap dancing)!
« Reply #1 on: May 04, 2011, 11:23:10 am »
Hey, Tisha!  So good to hear from you!  And what great news to hear!  Glad the nystagmus has eased up for you, too.  Hope all else is going well for you and your family!  We need to catch up on things!

Take care and thanks for sharing!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: It shrunk (said as I'm tap dancing)!
« Reply #2 on: May 04, 2011, 02:22:31 pm »
Tisha ~

Many thanks for sharing the great MRI report!  We love to learn about AN patients doing well and moving toward normalacy.  I'm glad you're now one of them.  :)

Jim
« Last Edit: May 04, 2011, 04:12:50 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tisha

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Re: It shrunk (said as I'm tap dancing)!
« Reply #3 on: May 04, 2011, 03:46:34 pm »
Thanks Cindy and Jim!  My nystagmus started last May 13 (I'll never forget) and what a year it has been with that. My hopes are that the worst is behind me.

Cindy...we need to catch up on books!  Good to hear from you!  Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

mk

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Re: It shrunk (said as I'm tap dancing)!
« Reply #4 on: May 04, 2011, 05:50:26 pm »
Hi Tisha,

great news. It has been a bumpy ride for you, but obviously things are improving nicely. I think I need to go back to your posts and read a bit about your nystagmus experiences, as I have been getting some after surgery.

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

leapyrtwins

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Re: It shrunk (said as I'm tap dancing)!
« Reply #5 on: May 04, 2011, 10:22:51 pm »
Wow, I didn't know you could tap dance  ;D

Congratulations on the good news!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Phillies

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Re: It shrunk (said as I'm tap dancing)!
« Reply #6 on: May 04, 2011, 11:30:47 pm »
Congrats! I was thinking of getting in touch with the doctors at Stanford as well. Although traveling across country for CK would be asking alot...
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kenneth_k

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Re: It shrunk (said as I'm tap dancing)!
« Reply #7 on: May 05, 2011, 01:23:08 am »
It would be great if you could upload a tap dance video ;D

Happy to hear the good news.

Kenneth
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ppearl214

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Re: It shrunk (said as I'm tap dancing)!
« Reply #8 on: May 05, 2011, 05:54:41 am »
Tisha!!!!!!!!!!!   :-*  :-*  :-*

What can I say? :)  FAB news, thank you SO much for sharing this.... and me thinks you know just how much I've been cheering you on over the years! :)  Looks like this cheerleader's wishes are paying off! Well done! (in ALL regards!)

MAJOR congrats!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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