OK ,
After looking for answers to my head spasms, which I've always described as movement feeling in my head(brain), the shivers or chills from my toes to my head at the same time, followed by a worsening headache, all started day 1 of FSR treatments. Last March of 2007 went back to facility that did FSR and seen the neuro-oncolyogist. At first visit he blames these spasms on my neck. OK I have had neck problems for 18 yrs, and never up to my 57 yrs of life do I get this feeling. Fast forward six months later same neruo has some answers for me that seem they make sense. Yes, I could have nerve damage. The chills could be from a condition caused by radiation I have been on clonazepam which is a seizure med that also acts as an anxiety drug. First neuro put me on that, who also tested me for seizures which were negative. This current neuro doesn't like that I am on clonazepam. So about 6 weeks ago I noticed spasms to seem more frequent. Call neuro to see if I could possible increase the meds. Nurse says no, he wants to test you for seizures. So make a two hour trip there, he immediately dismisses any notion of zeizures. Again he's back with the neck. Co-incidence it all began with radiation. I told him I dissagree with him. He talks about all the data he knows of and these symptoms don't match. So now he puts me on neurontin a zeizure med also doubles as a nerve pain med. I am not out to sue anybody or anything like that. You know that saying "I know my own body, listen to it). I know that I never had spasms in my head, chills or shivers or headaches(so rare that took a tylenol and the headache went away immediately ) before day one of radiation. At this point I'm very confused.
mema
