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Author Topic: Really Great News  (Read 5549 times)

saralynn143

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Really Great News
« on: September 06, 2008, 06:11:01 pm »
So in the middle of a really rotten day in which I woke up at 5 a.m. to drive 2 hours to my parents' house to help my mom clean up their incredibly cluttered house so that my dad who just had heart surgery can come home from rehab, I went to the bathroom and wrinkled my nose in frustration at much more than the way I looked. (Sorry for that run-on sentence, but that's about the way the day felt.) Anyway, when I wrinkled my nose, THE LEFT SIDE MOVED! I have real live genuine bona fide movement on the left side of my face! Just a tiny one, but I'll take it.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

lori67

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Re: Really Great News
« Reply #1 on: September 06, 2008, 06:30:41 pm »
Sara -

That is great news!  Keep wrinkling!!  Your nose, that is!  ;D  I hope before long, you have a smile like this smiley face   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Really Great News
« Reply #2 on: September 06, 2008, 06:41:13 pm »
Sara~

You get the big WHOO-HOO!!!!  So excited for you - keep up the good work!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

nancyann

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Re: Really Great News
« Reply #3 on: September 06, 2008, 07:08:34 pm »
Keep on truckin' baby,   the healing continues ! !
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

sgerrard

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Re: Really Great News
« Reply #4 on: September 06, 2008, 08:40:19 pm »
Nice! Sounds like it picked a really good time to show up, too! Where there's smoke, there's fire!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jeanlea

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Re: Really Great News
« Reply #5 on: September 06, 2008, 08:54:57 pm »
Sara,

That's one way to make a difficult day better.  Good for you!!  That smile you made on the inside will soon be on the outside.

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

leapyrtwins

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Re: Really Great News
« Reply #6 on: September 06, 2008, 10:41:45 pm »
Congratulations, Sara!

I just love reading encouraging posts like this one  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lacey7

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Re: Really Great News
« Reply #7 on: September 06, 2008, 11:16:52 pm »
Congratulations Sarah.....
I'm SO HAPPY for you.........and I'm so thankful that God has blessed you!
Very soon you will have that beautiful smile, too.  We'll take the nose wrinkling for now and be thankful!
Congrats!
Lacey
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Diagnosed 4/15/08.
AN - 1.4 cm.  Translab surgery 6-26-08.  SPF leak 7-5-08, and went back into surgery 7 -6-08.
SSD left side, after surgery
Dr. LaRoure - Providence Hospital, Southfield, MI.

mimoore

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Re: Really Great News
« Reply #8 on: September 07, 2008, 10:15:49 am »
YAHOOOOOOOOOOOO SARA. This is how it starts tiny tiny tiny movements.
I am so happy for you. A little hope makes it easier to cope!!!!
Michelle  ;D
Have a fantastic day!
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Jim Scott

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Re: Really Great News
« Reply #9 on: September 07, 2008, 02:31:40 pm »
Hi, Sarah:

Congratulations on this 'small victory'!  :)  We all share your joy, today. 

Not only is the news encouraging but it demonstrates that patience can and is rewarded.  Thanks for giving us this Really Great News.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CROOKEDSMILE

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Re: Really Great News
« Reply #10 on: September 07, 2008, 05:08:57 pm »
Sara,
My kids hate when I say this....but I'll say it to you.............."I TOLD YOU SO!"
Your picture was showing signs of improvement that you can't see because you see yourself everyday and may not know what to look for! I'm SOOOOOOOOOOO excited for you. I knew it would happen for you.
(don't get discouraged if it doesn't do it often or if things are still for awhile....it seems to go in cycles.)
Keep the Faith,
Angie
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saralynn143

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Re: Really Great News
« Reply #11 on: September 07, 2008, 05:30:10 pm »
Thanks everyone. Actually the news is even better. I was so excited about my nose yesterday that I didn't even think to check anyplace else. Today I did, and there is also a tiny little movement at the corner of my mouth when I pucker up. Kisses for everyone!

Sara

Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

mimoore

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Re: Really Great News
« Reply #12 on: September 07, 2008, 05:41:16 pm »
That is encouraging new Angie - I was getting a bit worried that nothing else had happened.
That is so awesome Sara - keep us posted.
Big smiles are on there way.
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

lori67

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Re: Really Great News
« Reply #13 on: September 07, 2008, 07:47:46 pm »
Watch out!  Sara will be running around kissing everyone and wrinkling up her nose!   :D

Good for her!   ;D  Yay!!!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

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Re: Really Great News
« Reply #14 on: September 08, 2008, 08:01:39 am »
Sara-

That is so wonderful!!  My first bit of movement came back under my eye, followed by a little bit at the corner of my mouth.  I now have fairly good movement on my entire upper lip.  Every little inch of progress is deserving of a celebration - so I am celebrating for you today!  Keep us posted on your progress!  Speaking for myself, it is very encouraging to hear how other people are doing on the racial recovery road. 

Debbi, trying to curl my upper lip :-\
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com
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