Author Topic: stupid question-  (Read 3709 times)

kaykay

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stupid question-
« on: June 10, 2011, 06:08:26 am »
for everyone that had surgery-
Did everyone get their balance nerve removed?

lori67

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Re: stupid question-
« Reply #1 on: June 10, 2011, 07:01:58 am »
Can't speak for everyone, but I know I had mine removed.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Brewers7

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Re: stupid question-
« Reply #2 on: June 10, 2011, 07:45:38 am »
My 8th nerve was (balance & hearing).
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

epodjn

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Re: stupid question-
« Reply #3 on: June 10, 2011, 07:49:53 am »
Yup, mine was removed also. Not sure it really mattered though since my balance was already so bad before surgery. I actually have better balance now than before surgery. It took a few years to get to this point though.
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

Cheryl R

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Re: stupid question-
« Reply #4 on: June 10, 2011, 07:51:26 am »
I think that is the usual for most surgeries as then the brain can not compensate completely on the other side if one still left there.
                                           Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

leapyrtwins

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Re: stupid question-
« Reply #5 on: June 10, 2011, 06:42:53 pm »
I'm with Cheryl R, this is pretty typical of AN surgeries - and the body does compensate.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

KBL

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Re: stupid question-
« Reply #6 on: June 10, 2011, 10:23:05 pm »
One of my surgeons actually gave me a shot of something in my ear a week before surgery to kill off my balance nerve ahead of time so I would start getting used to it being totally gone and would have less deal with right after surgery.  He would have liked to do it 2 weeks before surgery, but everything happened really fast for me.
« Last Edit: June 10, 2011, 10:24:47 pm by KBL »
5.6 cm. left side retrosigmoid surgery January 2010.  Dr. Villavicencio, Boulder, CO  Cyberknife April 2010  Left side  facial paresis started September 2010.  Gold weight implant Dec. 2010.  Total hearing loss on left side.  As of today, tumor still appox. 28x18x8 mm

Desilu

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Re: stupid question-
« Reply #7 on: June 11, 2011, 07:57:11 am »
Hi Kaykay,

First of all there are no stupid questions! Just people trying to get information for a problem that they would rather not have. So please ask anything you would like, and don't feel foolish or stupid, we have all been there and done that. I too had my balance nerve severed. The doctors believe that it is better to sever it than have it damaged and your brain trying to figure out what is going on. Instead of a steady flow of electricity, it would be like sparks firing on and off in your brain. I hope this helps? :)  Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

leapyrtwins

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Re: stupid question-
« Reply #8 on: June 11, 2011, 12:13:12 pm »
Kaykay -

Ann is right, there is no such thing as a stupid question - here on the Forum or elsewhere.

Forgot to say that in my first response to this thread  :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JAndrews

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Re: stupid question-
« Reply #9 on: June 13, 2011, 05:41:38 pm »
yes, mine was removed. tumor was stuck and wrapped around it
2.5cm x2.0cm cerebellapontine angle meningioma. 100% removal 2/2009. House Ear Institute. Dr Brackmann and Dr. Schwartz. SSD right ear. No balance problems except when really tired, no headaches. Transear hearing aide made no difference, tried it for 4 months.

CHD63

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Re: stupid question-
« Reply #10 on: June 13, 2011, 08:31:00 pm »
Kaykay .....

Just dittoing that there are no stupid questions!  ..... and yes, my balance nerve was severed the first go-around for me.  Made the second go-around a whole lot easier!  Balance adjustment all done three years ago.  Still a bit wobbly from weakness/fatigue but getting better every day.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011