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Author Topic: BUSTIN' OUT!!  (Read 8174 times)

Kaybo

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BUSTIN' OUT!!
« on: November 27, 2010, 01:46:32 pm »
SO I tried riding a bike for the first time today in 15 YEARS!!!!  That is something that they told me NEVER to do after I had AN surgery!

WOnder what else I can do??   ::)

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

saralynn143

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Re: BUSTIN' OUT!!
« Reply #1 on: November 27, 2010, 01:48:48 pm »
What else can you do? Whatever you set you mind to.

Go Kaybo!
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Jim Scott

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Re: BUSTIN' OUT!!
« Reply #2 on: November 27, 2010, 01:54:24 pm »
Congratulations, Kay!  How was your bicycle ride?  I've wanted to try riding a bike since my surgery/radiation back in '06 but I can't find a kid who'll lend me their bike.  :)

Jim
« Last Edit: November 27, 2010, 02:16:34 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kaybo

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Re: BUSTIN' OUT!!
« Reply #3 on: November 27, 2010, 02:01:45 pm »
Jim~
we have PLENTY of bikes here - you can come for a visit AND borrow a bike!!  ;)

K   ;D
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: BUSTIN' OUT!!
« Reply #4 on: November 27, 2010, 02:02:57 pm »
Woo Hoo, Kay!!

Brings back memories of my first time on a bike ...... many, many, many years ago  :o  ..... my sister (older than I) and I had only one bike for the two of us (OK, all together now ..... "and I walked a mile to school everyday") ..... but I digress.  She most unwillingly let me try riding "her" bike without giving me any instructions, including how to stop it ..... mind you this was a coaster brake bike.  Luckily there were soft bushes nearby.

I am afraid my bike-riding days are a thing of the past, but congratulations to you for proving you can do it!!  Onward and upward.

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Syl

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Re: BUSTIN' OUT!!
« Reply #5 on: November 27, 2010, 06:32:35 pm »
Congratulations, Kaybo!!

It's not that hard, is it? I had to try it just to prove to myself that I can do it. I saw a pogo stick in an ad and was tempted, but that would be suicidal.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

lori67

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Re: BUSTIN' OUT!!
« Reply #6 on: November 27, 2010, 06:42:09 pm »
Ok, first things first - Syl - step away from the pogo stick.   :D

And Kay - I'd be willing to bet there's nothing you can't do.

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jill Marie

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Re: BUSTIN' OUT!!
« Reply #7 on: November 27, 2010, 08:30:28 pm »
Way to go Kaybo!  The more you ride the better you will get at it, I found that more of my riding problems came from my mind then from my body.  If I thought I couldn't do it I couldn't or at least not very well, when I decided I could things went a lot smoother.  I always remember what the doctor told me I could and couldn't do right after surgery, he was wrong so I figure he could be wrong about what I can do 18 years later.

So, what's next?  I tried snow skiing once, won't do it again, not AN related, just chicken! Jill
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Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

Kaybo

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Re: BUSTIN' OUT!!
« Reply #8 on: November 27, 2010, 08:38:45 pm »
Oh...I've already skied - that faster the better - I'm kind of Kamakazzee!!!  Actually, the first time I got to let loose was last spring when we went to Canada without the kids and skied one day!!  SO FUN!!

i'm not sure what is next!

K   ;D
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

dalern

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Re: BUSTIN' OUT!!
« Reply #9 on: November 27, 2010, 08:40:37 pm »
Go Kay!  I love my bike!  Keep at it!
~Dale
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Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

G_Man

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Re: BUSTIN' OUT!!
« Reply #10 on: November 27, 2010, 08:55:17 pm »
Kaybo
Sounds like you are ready for the excursion to Cedar Point after the symposium.  Coasters!  Coasters!!  Coasters!!!  Yeah baby!

Logged
Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

Kaybo

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Re: BUSTIN' OUT!!
« Reply #11 on: November 27, 2010, 08:58:04 pm »
I LOVE ROLLER COASTERS!!!  The bigger and more twistier the better!!  Bring 'em on baby!!

K   ;D

However, I don't think I will make it to the Symposium this year...  :-[
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

saralynn143

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Re: BUSTIN' OUT!!
« Reply #12 on: November 28, 2010, 10:56:10 am »
Quote from: Kaybo on November 27, 2010, 08:58:04 pm
However, I don't think I will make it to the Symposium this year...  :-[

Then how will I be able to treat you to a celebratory glass of wine, Kaybo?

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

moe

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Re: BUSTIN' OUT!!
« Reply #13 on: November 28, 2010, 11:10:02 am »
K,
Have fun with your bike and the weather should be good pretty much year round. ;D Fun exercise with the kids.

 I remember the year after my surgery, back home with the kids in TX while hubby was stationed in WA:
 Got on my bike without really giving it a second thought and did great. It was the vision thing I had to worry about. (I had already compensated the balance thing).

Sold it to a teenager for 10 bucks when we moved. I want to buy a new one, but hubby is poo pooing that idea, since we live rural now. Not gonna let that bring me down~
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

leapyrtwins

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Re: BUSTIN' OUT!!
« Reply #14 on: November 29, 2010, 11:08:40 pm »
Good news, Kaybo!

Congrats!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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