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Author Topic: Decision made to have Gamma Knife - will be leaving W&W Category  (Read 7637 times)

frank

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Decision made to have Gamma Knife - will be leaving W&W Category
« on: November 07, 2009, 04:04:18 pm »
Hi All:
I have made my decision and will soon be leaving the W&W category. I am scheduled to have Gamma Knife radiosurgery on Monday Nov. 9. Please keep me in your thoughts and prayers.
It has been enjoyable reading all of the comments and posts on this forum over the past two and a half years. I certainly have obtained a great education on the subject and I feel that I know just what to expect. I am looking forward to getting it done and moving on with my life.
Hope to continue participating on the ANA forum in the future. You all have been great.
Frank
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4/07 MRI 8x5x6 mm  AN, RS  
Partial hearing loss and tinnitus 
4/08 MRI 10x5x5 mm
No additional hearing loss
4/09 MRI 1.2 cm , 6mm in AP dia, small mushroom shaped component into CB angle cistern. No additional hearing loss
Gamma Knife 11/09 Univ Hosp GK Ctr, Syracuse
Dr Hahn & Woods

Debbi

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #1 on: November 07, 2009, 04:30:13 pm »
Hi Frank -

Will be sending you prayers and good thoughts on Monday!  And, waiting to welcome you to the legions of Posties.  Be sure to check back and let us know how it went.

Best of luck Monday...

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #2 on: November 07, 2009, 04:50:47 pm »
Frank ~

Congratulations on your decision.  Many of us will be thinking of and praying for you Monday (9th).  I'm sure you'll do fine.  Please let us know when you've become a 'postie-toastie', as we call AN patients who've undergone radiation. 

I added your GK date to our AN Treatment calendar http://my.calendars.net/an_treatments/d09/11/2009?authenticate=&display=M&style=B.  I only had the minimal information so please feel free to elaborate, as you see fit. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mickey

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #3 on: November 07, 2009, 07:05:07 pm »
Best wishes on a speedy recovery! Mickey
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Jackie

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #4 on: November 07, 2009, 07:39:29 pm »
Hi Frank,

Sending you blessings for an uneventful experience with GK, but a successful one of course! May your future be bright!
Will be praying for you,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

LisaP

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #5 on: November 08, 2009, 11:05:58 am »
Hi Frank,

Best of luck to you, let us know how your journey goes.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

leapyrtwins

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #6 on: November 08, 2009, 01:53:26 pm »
Good luck, Frank.  You'll be in my thoughts and prayers.

I think Gamma Knife is a great choice.

Hope all goes well; please send us an update when you can.

Best,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #7 on: November 08, 2009, 02:28:28 pm »
Hi Frank,

Best wishes for the procedure. I also hope you continue participating in the forum, and share your experience with the next bunch.  ;)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

gingerbread6

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #8 on: November 10, 2009, 06:38:53 am »
Hi Frank,

Hope all went well yesterday with your treatment. My thoughts and prayers are with you.

Gingerbread6
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GRACE1

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #9 on: November 10, 2009, 08:05:06 am »
Glad you made your decision.  I am a GK fan.  Best of wishes!

Grace

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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

frank

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #10 on: November 10, 2009, 12:30:56 pm »
Hi All:
Many thanks for all the well wishers and your prayers.
My treatment at Upstate Gamma Knife Center in Syracuse yesterday went very well. The doctors and nurses were just great. I arrived at 6:30 am and it was all over with by 11 am. I was very calm and at ease throughout the entire procedure - most likely because I knew what to expect. I don't feel any different today than before the procedure and will most likely resume my normal activities tomorrow. I do have four small sores on my head where they screwed the head frame on, but they should heal in a few days. All things considered, it was an easy procedure to go through. I will have a follow up visit with Dr Woods, my Otolaryngologist, in about a month. We will probably schedule the next MRI at that time to determine how things are progressing.
I do plan on continuing to follow this forum and would be happy to comment to anyone thinking about having Gamma Knife in the future.
Again, my thanks to you all.
Frank
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4/07 MRI 8x5x6 mm  AN, RS  
Partial hearing loss and tinnitus 
4/08 MRI 10x5x5 mm
No additional hearing loss
4/09 MRI 1.2 cm , 6mm in AP dia, small mushroom shaped component into CB angle cistern. No additional hearing loss
Gamma Knife 11/09 Univ Hosp GK Ctr, Syracuse
Dr Hahn & Woods

Vivian B.

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #11 on: November 10, 2009, 02:26:05 pm »
Hi Frank

Sorry I am late replying but I see that you are doing well. That's great to be on the other side of things. I hope to be there soon as well. Keep us posted. I would love to follow your progress as I am also considering the same treatment.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Jim Scott

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #12 on: November 10, 2009, 03:09:05 pm »
Frank ~

Congratulations on successfully completing your Gamma Knife treatment!  I'm pleased to learn that it went smoothly and with no ill effects.  I applaud you for your willingness to share your experience with prospective GK patients. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Rivergirl

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #13 on: November 10, 2009, 07:03:13 pm »
So nice to have it behind you
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

ppearl214

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Re: Decision made to have Gamma Knife - will be leaving W&W Category
« Reply #14 on: November 11, 2009, 12:45:34 pm »
Frank, I know I am late on this but congrats on making your decision..... for having GK done.. and sending wellness wishes to you for a soon-to-be-dead-head-booger (as I like to call my AN).

Congrats on becoming a "toastie postie" (radiated post-treatment)!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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