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Author Topic: Patient-Member Survey?  (Read 2498 times)

jsanders1379

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Patient-Member Survey?
« on: June 23, 2014, 10:55:52 am »
Has anyone else taken the online member survey that we were e-mailed about? I started to take it, but then it became obvious that the previous person's responses were still on there, which i would have had to delete to enter mine- things like name of doctor, description of symptoms, etc. Didn't seem very well constructed for privacy issues....
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Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver

elsie

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Re: Patient-Member Survey?
« Reply #1 on: June 23, 2014, 06:34:43 pm »
i took it -had no issues with the survey, but the ANA did send me an email (well after i submitted) asking me to complete the survey.  doesn't bode well for the results.

hope that you didn't get my answers!
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Very large AN removed Aug., 1988 - pushed cerebellum aside, touching brain stem
Dr. Wiet in Hinsdale did 12 hour surgery, got it all
Total right-side facial paralysis for 6 months, 50 - 75% return
Extreme dry eye and tinnitus in both ears
Lost all hearing in AN ear
1/8/14  AN Regrowth confirmed

Echo

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Re: Patient-Member Survey?
« Reply #2 on: June 23, 2014, 07:02:42 pm »
I just went on now, entered my email address and went to start the survey only to find someone else's answers on each of the first 5 pages I looked at.  So much for privacy or accurate results!

Cathie.
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Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

arizonajack

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  • Arizona - It's a Dry Heat
Re: Patient-Member Survey?
« Reply #3 on: June 24, 2014, 07:59:07 am »
I sent an email to the ANA director about the survey.

Maybe it'll get fixed.
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Director

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Re: Patient-Member Survey?
« Reply #4 on: June 24, 2014, 08:10:45 am »
We discovered that there was a technical issue with the link we provided in the recent emails that were sent about our patient survey.  We had sent it before and it was fine – but something happened to it.  The information in the survey that you saw was totally random information – not yours, not anyone else’s either.   A revised email has been sent.

We apologize for this.

Thanks to all who have participated in our patient survey.

Judy Vitucci
CEO
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