Author Topic: Pooter's surgery updates  (Read 82698 times)

Debbi

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Re: Pooter's surgery updates
« Reply #315 on: July 03, 2008, 09:04:54 am »
Jenni and Brian-

I echo Wendy - so sorry that you're back in the hospital, Brian, but also know it is the right place to be now.  This is so creepily familiar to me, unfortunately.  I will hope that your outcome with the infection turns out as well as mine did (hopefully minus the PICC line). 

I really know how discouraging this is, but hang in there. 

I know the hospital is probably not the romantic getaway that you were both looking for this weekend, but it is the best place to be right now.

Brian, prayers continue to come your way.  Jenni, take care of youself, too.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Pooter

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Re: Pooter's surgery updates
« Reply #316 on: July 03, 2008, 09:12:50 am »
Greetings from the hospital!!  Its hard to type one-handed (with the IV being at the crook my arm and being tempermental if i twich my nose wrong) but we'll give it a shot.  I see Jenni has kept you well informed thus far.  I feel MUCH better today.  Not sure if its the lack of meds (diomox) or increase of meds (antibitics and steroids).  My temp was elevated last night but not all day that I expected.  

I talked to the infectious disease doctor and no culture yet.  More and more it looks like a reaction to the diomox.  They will probably do another tap  tommow (not as bad as I thought) to be sure the infection is better.  I may even get home without a PICC line (no offense debbi ;) )!!  I will know more on that later.

Thanks for keeping me in your thoughts and prayers.

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Kaybo

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Re: Pooter's surgery updates
« Reply #317 on: July 03, 2008, 09:14:39 am »
Hey Guys~
Well, I have to agree with Debbi that the hospital is not where you WANT to be (not exactly Cancun...) but hopefully it will provide the answers to get there (OR SOMEWHERE for a romantic get away) sooner!!

Brian~
I know it is tempting...but you DO NOT want to be part of our exclusive PICC Club...I repeat, DO NOT!!   ;)

Definitely praying for you both!
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Debbi

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Re: Pooter's surgery updates
« Reply #318 on: July 03, 2008, 09:17:20 am »
Kay's right, Brian - as glamorous and exotic as the PICC lines appear to be, I don't recommend it ... at all!  Although, if you end up with one, maybe we can start a PICC line camoflauge competition...   hhhmmm...

Debbi - piccless and praying you remain piccless too.
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

yardtick

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Re: Pooter's surgery updates
« Reply #319 on: July 03, 2008, 09:54:06 am »
Good Luck Brian,

Sending you hugs & kisses from Ontario.   :-*

Get better real soon,
Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Pooter

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Re: Pooter's surgery updates
« Reply #320 on: July 03, 2008, 10:28:22 am »
I notice my little patient got on earlier this morning as soon as I left the hospital (went to get the kids and spend a little time with them today). I was going to update you all, but it sounds as if he has already done so. I noticed he also clarified "Diomoxx" so I didn't mess it up and say "Vioxx" like I had with some of his friends yesterday. ;) He was not happy to hear that I made that mistake. LOL We will update when we know more.
Love,
Jenni
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Pooter

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Re: Pooter's surgery updates
« Reply #321 on: July 03, 2008, 02:16:16 pm »
Awww!! I was *SO* looking forward to being in that exclusive club tho!  I don't know what I will do with myself if I can't be part of the PICC line club!  I guess I'll feel included because of the double-bonnet club.  :)

I misspoke about "vioxx" a little bit.  It's a pain med that was taken off the market because of liver problems, Jenni.  Not exactly what I had remembered, but equally as bad..  I was thinking Vioxx was more along the lines of Cialis or something like that.  ;)

So far, so good.  I ate and took a short nap while Jenni and the kids were gone.  A side effect of one of the meds I'm on is an increased appetite which bodes me well having lost 25 lbs.  I actually went downstairs and got breakfast, came back and ordered more, then ordered and ate all of lunch.  For a person who normally doesn't eat breakfast and lately has only eaten 1 primary meal a day, that's progress.  I'll probably get released tomorrow, but they havent said officially yet.

Thanks for all the welll wishes and concernes.  They really do help!

Brian

Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Tamara

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Re: Pooter's surgery updates
« Reply #322 on: July 03, 2008, 02:39:14 pm »
So glad to hear you're feeling better Brian!!  I know the hospital sucks, but the food must be good at least!  AND, it's much better that your problems are due to an allergic reaction than to an infection.  I know you're not totally in the clear yet, but all seems to be boding well at this point.

Take Care,
Tammy
7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

leapyrtwins

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Re: Pooter's surgery updates
« Reply #323 on: July 03, 2008, 02:50:42 pm »
Pooter -

typing posts with one arm attached to an IV!  Either you are addicted to this forum, or you just plain miss us  :D

Glad to hear you are feeling better - and that you are eating.  The nap doesn't sound too bad either  ;)

I don't think you really want to be part of the PICC line club, but maybe Debbi could send you one of her "lemons" just so you don't feel left out   ;D

Keep getting better!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Pooter's surgery updates
« Reply #324 on: July 03, 2008, 03:01:22 pm »
Brian~
I still have some IV bags of antibiotics in the fridge in the garage and a pole if you want it!!     ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Debbi

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Re: Pooter's surgery updates
« Reply #325 on: July 03, 2008, 03:06:00 pm »
And, I think I may have a few supplies lurking about also - I'll box them up straight away!  Sorry, no lemons, but sounds like Kay's got you covered with the bag-o-vanco  :D  Just in case...

Seriously, glad that you might get "sprung" tomorrow, Brian!  And, really glad that it looks like you won't get to join the picc line club!  That would be a wonderful way to celebrate 4th of July - I'll keep my fingers crossed. 

Debbi, glad the picc club is staying so small...
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: Pooter's surgery updates
« Reply #326 on: July 03, 2008, 04:54:49 pm »
Brian~
I still have some IV bags of antibiotics in the fridge in the garage and a pole if you want it!!     ;D

Kaybo -

what is it with you and Lori and medical stuff and garages?  :D LOL

Sounds like you and Debbi are trying to turn Pooter into a pseudo-PICC patient  :)

Very nice of you guys to make him feel like one of your "club".

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Pooter's surgery updates
« Reply #327 on: July 03, 2008, 05:01:03 pm »
Jan~

I just want to be as helpful as I can to everyone...   ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Pooter

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Re: Pooter's surgery updates
« Reply #328 on: July 03, 2008, 07:18:29 pm »
Heh... Just no garage power tools, please. :)  And, do I have to post a picture if I do this?  What an intiation to a club.  Just don't strip me down and make me do laps in the snow.  Heh  That's a visial I'm sure most could do without... (sorry moderators!)  ;)

Pooter...
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Pooter's surgery updates
« Reply #329 on: July 03, 2008, 10:43:14 pm »
Initiation photos are mandatory, sorry!  :D

Don't worry, though JulieW has promised us all pics of her fat graft incision so you won't be the only one "sharing" here  ;)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways