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Author Topic: Diagnosed in December  (Read 4058 times)

kintro

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Diagnosed in December
« on: January 29, 2011, 03:38:36 pm »
Fresh off the MRI boat with my AN diagnosis.  I have been lurking in these forums for a while.  Decided to sign up.  I am going to try for CyberKnife with Dr. Chang, if I can get the pre-auth OK.
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Left 10mm x 6mm x 6mm
Tinnitus / High Freq. hearing loss

Jim Scott

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Re: Diagnosed in December
« Reply #1 on: January 29, 2011, 04:09:53 pm »
Hi, Kintro - and welcome.  Glad you decided to register and post.

Dr. Chang has a sterling reputation and you would do well to secure his services, if possible.  I wish you total success.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

TJ

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  • 1.2 cm AN right side, CK November 2010
Re: Diagnosed in December
« Reply #2 on: January 29, 2011, 05:10:41 pm »
kintro

Let me also welcome you to the forum.  If you have been lurking I am sure that you have read many of the posts.  Make sure you get all the information on radiation and surgery.  CK is very good and easy to go through.  But you want all the information first.  I am sure if you can be seen at Stanford the doctors will provide lots of information.

Best of Luck

Tj
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LisaP

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Re: Diagnosed in December
« Reply #3 on: January 29, 2011, 06:26:16 pm »
Hi,

Hi and welcome, good luck on your journey, I continue to watch and wait with my A.N.  This forum is full of great information.

Best wishes,

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

wendysig

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Re: Diagnosed in December
« Reply #4 on: January 29, 2011, 11:07:35 pm »
Hi Kintro and welcome,

I know deciding on treatment gave me a great sense of relief and I hope it does you too.  I'm keeping my fingers crossed that you will get the pre-certification for Dr. Chang and quickly.  The sooner things are set in motion, the sooner you can put this behind you.  As yopu can see, I had microsurgery, but I'm sure many people who have had CK will chime in with helpful information soon.

Sending good vibes your way,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Tumbleweed

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Re: Diagnosed in December
« Reply #5 on: January 30, 2011, 01:20:10 am »
Hi, Kintro:

Welcome to the forum. I had CK with Dr. Chang at Stanford. It/he was a godsend. Dr. Chang's care far exceeded my most fervent hopes. If you can have him be your doctor for CK treatments, you will be in the very best hands possible.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

leapyrtwins

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Re: Diagnosed in December
« Reply #6 on: January 30, 2011, 11:17:10 am »
CK with Dr. Chang is a great choice.

Good luck!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: Diagnosed in December
« Reply #7 on: January 31, 2011, 09:32:08 am »
Adding my welcome, kintro.  Hope you have no trouble with the pre-authorization.

Tell us a little bit more about your situation ..... symptoms, size of AN, etc.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

kareno

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Re: Diagnosed in December
« Reply #8 on: January 31, 2011, 10:57:51 am »
Hi Kintro:

Wishing you the best of luck with your treatment.  I am sending all positive thoughts and prayers your way.

Karen
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Caregiver:  Husband 3.0cm diagnosed 1/10, Retrosigmoid Surgery 4/10 Tufts Medical CTR Boston, Dr. Carl Heilman-Exceptional Surgeon

james e

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  • 72 years, 1.7cm, trans lab Mar 2010, BAHA 5
Re: Diagnosed in December
« Reply #9 on: January 31, 2011, 02:28:22 pm »
Good luck to you.My AN was discovered December, one year ago, and I bounced back and forth between radiation and surgery, and after deciding on radiation, I had surgery in March last year. It appears most of here have pretty good outcomes either way. What was your thought process to chose CK? Ask lots of questions...get lots of answers...one big family here. Welcome to the club.
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kintro

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Re: Diagnosed in December
« Reply #10 on: February 04, 2011, 07:00:13 am »
I suppose I should put this in my signature:  1 x 0.6 x 0.6 cm in the left internal auditory canal.  My symptoms are high frequency hearing loss and tinnitus on the left side.  Some short dizzy spells that last a few moments.
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Left 10mm x 6mm x 6mm
Tinnitus / High Freq. hearing loss

CHD63

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Re: Diagnosed in December
« Reply #11 on: February 04, 2011, 07:24:04 am »
kintro .....

Thanks for letting us know a little bit more.  I suspect the short dizzy spells are the "wonkyhead" or disorientation spells many of us have/had.  Did you have any trouble getting the pre-authorization for Cyberknife treatment with Dr. Chang?

Many thoughts.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011
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