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Author Topic: Miss Molly's Week In Boston  (Read 10249 times)

stoneaxe

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Re: Miss Molly's Week In Boston
« Reply #15 on: June 16, 2009, 07:34:06 pm »
Molly...hope your pre-op goes as smoothly as mine. In at 7:00 out by 11:00... ;D. Like a well oiled machine. My appointment was at 8:00. We we're there early and they said to go down and see if I could get my chest x-ray done early. Got that done and back by 7:50. Went in quick...didn't even have much time to read. Testing, interviews and bloodwork went quickly.

I have to be in there at 6:00am...early start. Don't worry about the scarf. It would clash with my tiger stripe hat... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

MissMolly

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Re: Miss Molly's Week In Boston
« Reply #16 on: June 16, 2009, 07:44:12 pm »
Quote from: stoneaxe on June 16, 2009, 07:34:06 pm
Don't worry about the scarf. It would clash with my tiger stripe hat... ;D

Yes, Bob, but the scarf would frame your face so nicely.

I have to be at preop at 9:00 with audio stuff scheduled at 1:15 ish and then consult with Martuza at 3:00.  I think I'll be there for the long haul.  When do you actually do your surgery?

Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

MissMolly

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Re: Miss Molly's Week In Boston
« Reply #17 on: June 18, 2009, 08:52:05 am »
Had a reeeeeaaaaaaaallllllly long day at Mass General.  Preadmissions was 'short staffed' yesterday so the waiting area was crammed full of people.  Went fairly quickly though.  Had to wait quite a while for the nurse practitioner to come in and explain the surgical procedure stuff to me and my husband.  Grabbed a quick lunch at noon and went to audiology at 1:00.  Had a hearing eval (lost 10 Db since March!) and an ABR (Auditory Brainstem Response) which showed a .2 millisecond delay from my left ear when compared to my right. This makes it hard to localized.   Stopped by the Grey Family Waiting room and gave Stonaxe's wife a big hug and good wishes.  Met his awfully nice daughters.  Waited FOREVER for Dr. Martuza consult so I sneaked down and got a quick chest Xray which took only 15 minutes stem to stern.  Had consult with Dr. Martuza and his minions (clinical fellows) and left the hospital after 6:30 exhausted.  Home by 7:30 ish. 

My results show that my hearing continues to decline and the tumor continues to grow.  Was 1.1 Cm and is now 1.2 cm and I could definitely see a change in shape since the last MRI.  The first one looked like a good'n plenty candy.  This one looked like a good'n plenty candy with a foot on it stepping into my cranium. 

Sooooo, looks like the decision to move ahead with surgery was appropriate, for me anyway. 

I'll keep folks posted as I get ready for my surgery Monday Morning.  Early. 

Miss Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

Jeepers

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Re: Miss Molly's Week In Boston
« Reply #18 on: June 18, 2009, 09:42:23 am »
Quote from: MissMolly on June 18, 2009, 08:52:05 am

My results show that my hearing continues to decline and the tumor continues to grow.  Was 1.1 Cm and is now 1.2 cm and I could definitely see a change in shape since the last MRI.  The first one looked like a good'n plenty candy.  This one looked like a good'n plenty candy with a foot on it stepping into my cranium. 


 ;D


Good luck, Molly!
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Diagnosed 2003-right side-1cm AN
Wait and watch for 6 yrs; 2009 showed growth w/balance issues
Translab 7/9/09 - Drs. Battista/Kazan (Hinsdale IL); SSD
Recovering well!

NancyMc

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Re: Miss Molly's Week In Boston
« Reply #19 on: June 18, 2009, 09:55:30 am »
Molly,
Glad you survived pre-op, not the most pleasant experience, and the wait times can be ridiculous.
Like my surgery, my three month follow-up with McKenna was bumped.  Not sure why I need one anyway, so I'll wait until fall.
Just think of all the huge successes that have preceded you and know that you will be one, too.  But remember to take a basket of goodies to the OR.   ;)  Can't hurt!
Good luck.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

MissMolly

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Re: Miss Molly's Week In Boston
« Reply #20 on: June 18, 2009, 03:23:39 pm »
Bought a basket today.  Will fill it over the weekend!!   ;D
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

moe

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Re: Miss Molly's Week In Boston
« Reply #21 on: June 19, 2009, 12:22:46 am »
Miss Molly,
Hope the weekend goes by quickly and know that you are in good hands.
Soon it'll be all over.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

LisaP

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Re: Miss Molly's Week In Boston
« Reply #22 on: June 19, 2009, 02:08:05 pm »
Miss Molly,

My thouhts and prayer will be with you, best of luck and keep us posted.


Best wishes

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Helga

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Re: Miss Molly's Week In Boston
« Reply #23 on: June 19, 2009, 03:12:17 pm »
Molly,
I wish you the very best and will be thinking of you Monday! My date is coming up faster and faster, next brunch we'll both be laughing (symmetrically!!!).
Helga
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MissMolly

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Re: Miss Molly's Week In Boston
« Reply #24 on: June 19, 2009, 03:24:14 pm »
Yes, Helga.  Symmetrical laughs.  hee hee
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

Rich56

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Re: Miss Molly's Week In Boston
« Reply #25 on: June 21, 2009, 09:18:05 am »
Hi Molly,

Scarlett and I want to wish you all the best for a sucessful surgery tomorrow.

You are in our thoughts and prayers,

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

MissMolly

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Re: Miss Molly's Week In Boston
« Reply #26 on: June 21, 2009, 09:56:05 am »
Thanks Rich and Scarlett.  I'm getting anxious and the pre surgery steroids are giving me far too much energy.  I've already baked two batches of muffins for my surgical team!!!!
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

ppearl214

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Re: Miss Molly's Week In Boston
« Reply #27 on: June 21, 2009, 10:00:10 am »
Molly

I can't believe the time is already here!  The bloke and I send our very best wellness wishes to you... and we'll be cheering you on.  Wishes for a speedy recovery... and know you are in fab hands! Go rawk it! :)

Healing hugglez and hope to see you serving up (again) dumplins in October.

Good luck tomorrow!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

MissMolly

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Re: Miss Molly's Week In Boston
« Reply #28 on: June 21, 2009, 02:27:27 pm »
Thanks Phyl!  We'll keep you posted as I become a postie.

A friend on Facebook sent me a well wish this morning regarding my surgery.  I thought it was cute...

"vertigo, vertigoing, vertigone!"

Clever, huh?

Miss Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

Keri

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Re: Miss Molly's Week In Boston
« Reply #29 on: June 21, 2009, 05:36:33 pm »
"....and the pre surgery steroids are giving me far too much energy.  I've already baked two batches of muffins for my surgical team!!!!"

so is that why they prescribe steroids??!!

MissMolly, I wish you the best tomorrow. I hope and pray all goes really well and you will be joining us soon in postie land.

take care,
keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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