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Author Topic: Another brother dying  (Read 12796 times)

wendysig

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Re: Another brother dying
« Reply #15 on: January 25, 2011, 09:23:06 pm »
Nikki,

I hadn't read  all the posts in this thread until just now.  I am truly sorry to hear that your father is also so ill.  I truly hope that he gets better.  Please know that you and your family are also in my prayers.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

leapyrtwins

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Re: Another brother dying
« Reply #16 on: January 25, 2011, 09:30:06 pm »
Hugs, Lauren & Nikki  :-*

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: Another brother dying
« Reply #17 on: January 25, 2011, 09:33:49 pm »
Oh dear .....

So much stress and grief for both Lauren and Nikki.

My thoughts and prayers for you both.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

suboo73

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Re: Another brother dying
« Reply #18 on: January 27, 2011, 03:18:11 pm »
Quote from: leapyrtwins on January 25, 2011, 09:30:06 pm
Hugs, Lauren & Nikki  :-*   Jan

Prayers all around.

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

ombrerose4

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Re: Another brother dying
« Reply #19 on: February 02, 2011, 06:49:29 pm »
Just want to update everyone on my brother. He is still in very serious condition and has been moved to a larger medical center. His heart has suffered alot of damage and he is being treated for two clots in his legs. He is still paralyzed and they are still doing tests to figure out exactly what is going on. He has osteomyelitis (bone infection) in his spine and they are doing a cervical MRI tomorrow. It's a day by day situation and we are just trying to deal with it. Thanks for all of your support.
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

opp2

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Re: Another brother dying
« Reply #20 on: February 02, 2011, 07:31:36 pm »
I'm so sorry this has happened. I will keep my fingers crossed that the doctors can find out what is going on and help your brother recover. Sending you cyber strength! ---sorry the zzzz was meant to zap you with strength but I realized after that it might be taken for snoozing...which was not my intent..I'll shut up now...  :-[
« Last Edit: February 03, 2011, 10:51:00 pm by opp2 »
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

wendysig

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Re: Another brother dying
« Reply #21 on: February 03, 2011, 01:41:59 pm »
Lauren,

I'm sorry to hear that things have gotten even worse for  your brother.  Hopefully they will be able to find the source of the osteomyelitis and paralysis and treat both things quickly and effectively.  Have they put filters in his legs to prevent the clots from moving?  Please keep us updated and know that you and your family continue to be in my thoughts and prayers.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ombrerose4

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Re: Another brother dying
« Reply #22 on: February 11, 2011, 03:05:55 am »
My brother Michael, 58 years old, passed away this morning at 3 am. He went peacefully after three weeks of pain. May God bless him. So hard, losing my mom and two brothers within 7 years. Brainwreck is here- need to close my eyes.
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

msmaggie

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Re: Another brother dying
« Reply #23 on: February 11, 2011, 08:05:39 am »
I am praying that God will give you the peace and strength you need to get you through these difficult days ahead. My heart goes out to you!

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

CHD63

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Re: Another brother dying
« Reply #24 on: February 11, 2011, 09:31:53 am »
Lauren .....

You have been through so much, especially these last three weeks.  My heart goes out to you.  58 is much too young so that makes it even more difficult for you and the family.

Many thoughts and prayers for peace for you and the family and friends of your brother.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

yardtick

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Re: Another brother dying
« Reply #25 on: February 11, 2011, 11:24:07 am »
Lauren,

I am so sorry for the loss of your brother.  It is difficult for me to say any more, it is all too fresh for me.

Many hugs and kisses,
Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Jackie

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Re: Another brother dying
« Reply #26 on: February 11, 2011, 02:41:55 pm »
Lauren,

May I add my condolences to you and your family for the passing of your brother. I am so sorry
for your loss and pray for a peaceful heart for all of you, may your great memories override your grief.
Blessings,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Cheryl R

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Re: Another brother dying
« Reply #27 on: February 11, 2011, 03:22:32 pm »
I am sorry to hear of your loss and may you find peace in time,              Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Jim Scott

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Re: Another brother dying
« Reply #28 on: February 11, 2011, 03:27:24 pm »
Lauren ~

My sincere condolences on the loss of your brother.  Try to take heart from knowing that he is free of pain - and that you are in the thoughts and prayers of many people, including me.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Sue

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Re: Another brother dying
« Reply #29 on: February 11, 2011, 03:43:09 pm »
My sympathies to you and your family at this time.  My father was 57 when he died from heart problems.  Now he would have had his bypass surgery and been good to go for some years more, but in 1972, I guess that wasn't a very common procedure.  I am sorry for your loss.

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
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