Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36495 times)

yoga52smh

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Re: Age of AN patients: UPDATE with data so far
« Reply #90 on: September 16, 2007, 04:37:59 pm »
Diagnosed in Fall of '04 at age of 52 with a 1.5 cm AN.


Denisex2boys

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Re: Age of AN patients: UPDATE with data so far
« Reply #91 on: September 16, 2007, 06:38:43 pm »
Diagnosed this July at 43 (1.5 cm) - and I agree the hormone theory about accelerated growth - since my first pregnancy was at 35 my second at 37 (I lost that baby) and my third at 39 - - - -
« Last Edit: September 16, 2007, 06:42:56 pm by Denisex2boys »
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!

Dan

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Re: Age of AN patients: UPDATE with data so far
« Reply #92 on: September 18, 2007, 07:11:47 am »
Diagnosed May 07, 46 years old, 1.7cm.
US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

Jackie

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Re: Age of AN patients: UPDATE with data so far
« Reply #93 on: September 18, 2007, 07:38:48 am »
Diagnosed Feb. 07, 59 1/2, 9x11mm, symptoms for 6 mos. prior.
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Patch

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Re: Age of AN patients: UPDATE with data so far
« Reply #94 on: September 18, 2007, 02:22:31 pm »
AGE 38, 1.2 CM, HAD RADIATION JULY 2007. WAITING FOR FOLLUP MRI IN DECEMBER
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

Mary 117

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Re: Age of AN patients: UPDATE with data so far
« Reply #95 on: September 18, 2007, 02:28:50 pm »
Age 41 yrs -2cm Right side.
2cm x 1.5cm AN, Middle Fossa, Dr. Brackmann  05/24/05
Mild hearing loss, mild facial weakness, no balance issues

"well behaved women seldom make history"

okiesandy

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Re: Age of AN patients: UPDATE with data so far
« Reply #96 on: September 18, 2007, 03:54:05 pm »

Age 63 @ dx 1.0 x .7 CM  left side fast growing,total hearing loss on AN side..
Cyberknife 1/2006
Clinton Medbery III & Mary K. Gumerlock
St Anthony's Hospital
Oklahoma City, OK
Name of Tumor: Ivan (may he rest in peace)

deea

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Re: Age of AN patients: UPDATE with data so far
« Reply #97 on: September 19, 2007, 12:00:24 am »
55yr. female
5cm x 7cm discovered by mri two weeks after 55th birthday.  Tumor was 5mm x 7mm size of sm. pea in Feb.20  07   Surg. [middle fossa] Aug. 17 tumor had grown to size of olive..don't know which kind.  Some times the doc. say's jelly bean.   Don't care, just glad its gone!

Org. post stated AN size at surg. as 5x7cm @ time of operation.  Typo on path. report thank goodness....
« Last Edit: October 23, 2007, 08:25:10 pm by deea »

Patch

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Re: Age of AN patients: UPDATE with data so far
« Reply #98 on: September 19, 2007, 03:26:40 am »
THAT WAS ONE FAST GROWING AN. HAS ANYONE EVER HEARD OF A AN INCREASING IN SIZE THAT FAST?
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

TT

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Re: Age of AN patients: UPDATE with data so far
« Reply #99 on: September 19, 2007, 11:58:25 am »
Diagnosed at 52  - 2cm - my only symptom was gradual hearing loss.
2 cm AN - right side
Diagnosed 6/22/06
Retro. procedure performed on 8/24/06 / SSD
Dr. Peter Smith & Dr. Robt. Backer
St. Johns Hospital - St. Louis, Missouri

Featofclay

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Re: Age of AN patients: UPDATE with data so far
« Reply #100 on: September 19, 2007, 04:41:17 pm »
Diagnosed December, 2006, @ age 67.  Decided on surgery since my parents, grandparents and their parents have all lived to late 90's on both my mother's and father's side of the family.  Did not want to worry about it being there the rest of my life...no matter how slow most of them grow.  Looks like I am the oldest so far!!!   :'(
Diagnosed 12/19/06; 1.7 cm x .8 cm right side
Retrosigmoid 2/16/07 @ House Ear Institute
Dr. Rick Friedman, Dr. Marc Schwartz & Dr. Michael Stefan
Excellent results

4cm in Pacific Northwest

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Re: Age of AN patients: UPDATE with data so far
« Reply #101 on: October 18, 2007, 12:12:09 pm »
4cm
diagnosed at age 44
HAD good hearing – only some loss of higher frequencies in the left ear- 100% voice recognition
Symptoms: sleep disorder, tinnitus, facial flushing (maybe unrelated) upper back pain
Atypical AN (i.e. no one was sure it was an AN or a meningnoma until after the pathology came in. IE very Weird  looking tumor on the MRI)

"4" seems to be my number this year

4
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Clifton

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Re: Age of AN patients: UPDATE with data so far
« Reply #102 on: October 18, 2007, 01:51:07 pm »
Diagnosed @ 21 years old with 2 cm.

removed 6 weeks later via trans labrynth.

im still 21, deaf in the right ear, temporary facial paralysis. balance is awesome.
2cm AN right side.
Trans-Lab DONE as of sept 14th 2007!
some facial weakness initially, right ear completely deaf.

Dr. Perry      Neuro-otologist
Dr. Bogaev   Neurologist
San Antonio, Texas
25 years of age - 4 years post op

cheza

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Re: Age of AN patients: UPDATE with data so far
« Reply #103 on: October 18, 2007, 03:54:51 pm »

Age 30 3cm diagnosed 2 weeks ago surgery in 3 weeks, some loss of hearing, headaches, clumbsyness, sore tounge, and oh so very forgetful, with lack of concentration.

Cheryl XxX  :-*
diagnosed 4th Oct 07 with a 3cm left acoustic neuroma,
surgery 9th Nov 07, age 30 at time of surgery,
total hearing loss to left ear, grade 6 facial palsay (getting better)
latest MRI shows regrowth on facial nerve.

satman

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Re: Age of AN patients: UPDATE with data so far
« Reply #104 on: October 18, 2007, 04:20:29 pm »
41 yrs old 8cm removed april/07 -17 1/2 hr surgery
    7-12 nerve jump august/07 -8 hr surgery
and I got all the extra goodies you get from these things.
kicked my little 8cm buddy to the curb-c ya !