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Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36493 times)

lthompson

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Re: Age of AN patients: UPDATE with data so far
« Reply #105 on: October 19, 2007, 09:13:36 am »
Age 39, 7 mm
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Pembo

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Re: Age of AN patients: UPDATE with data so far
« Reply #106 on: October 19, 2007, 10:32:05 am »
updated 10-19-07
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Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

leapyrtwins

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Re: Age of AN patients: UPDATE with data so far
« Reply #107 on: October 19, 2007, 10:38:19 am »
Been on this forum for months, but somehow missed this topic.

Anyway, age 45 when diagnosed.  AN was 1.5 cm at the time.  Had surgery approximately 6 weeks later - AN was 2.5 cm and growing - no idea why there was such rapid growth.  Surgery (retrosigmoid) was 7 1/2 hours.  No "big" issues, post op - except for SSD on left side.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

carmen g

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Re: Age of AN patients: UPDATE with data so far
« Reply #108 on: October 24, 2007, 04:30:15 pm »
Age 38, 1.7 cm
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Diagnosis received 3-9-07.
1.7 cm, left side
Retro-sigmoid surgery 5-23-07
No complications, recovering well

MLB57

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Re: Age of AN patients: UPDATE with data so far
« Reply #109 on: October 25, 2007, 05:08:15 am »
Hi-- Thought I'd add my stats to your list--I was 50 when diagnosed in Fall of 2000 (after getting second opinion after first Ent said nothing was wrong with me!!) with a 1 cm intracanicular rt AN--had surgery Jan 2001 and turned 51 Feb 2001.  OR reports said total removal but not true and continued to grow --just completed 30 FSR treatments (to better protect my weakened facial nerve) at Mass General Boston MA (Dr Loeffler)...

Regards, Mary from MA ;D
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1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

hhb

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Re: Age of AN patients: UPDATE with data so far
« Reply #110 on: October 25, 2007, 12:12:59 pm »
age 52
2cm x 1.5cm x 1.5cm
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kippy6

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Re: Age of AN patients: UPDATE with data so far
« Reply #111 on: October 25, 2007, 01:50:59 pm »
Age of diagnosis -- Age 40 (3.0 cm)
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AN surgery July 19, 2006
for 3cm AN and arachnoid cyst (right side)
Translab surgical approach
Dr. Brackmann and Dr. Hitselberger
House Ear Insititute

coloradokidd

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Re: Age of AN patients: UPDATE with data so far
« Reply #112 on: October 25, 2007, 11:00:54 pm »
My son is 17 years old. 6mm tumor. Seeking another opinion tomrrow am.
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er

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Re: Age of AN patients: UPDATE with data so far
« Reply #113 on: October 26, 2007, 10:48:18 am »
Dear coloradokidd

Good lucky , when it is ourselves it is not so painful,  when it comes to our children it really hurts.
My prayers are with you and your son
eve
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mindyandy

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Re: Age of AN patients: UPDATE with data so far
« Reply #114 on: October 26, 2007, 01:04:26 pm »
Age 29 1.4cm AN. Waiting for my CK consult appt.
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Juliette

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Re: Age of AN patients: UPDATE with data so far
« Reply #115 on: October 26, 2007, 07:35:05 pm »
discovered at age 27 3.2 cm
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31 years old
3,2cm x 3 cm AN diagnose in march 2007
translab surgery on 0ctober 17, 2008 in CHUM à montreal
with BAHA

krmilmont

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Re: Age of AN patients: UPDATE with data so far
« Reply #116 on: November 07, 2007, 09:33:40 pm »
my son was 16 and had 6cm
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mindyandy

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Re: Age of AN patients: UPDATE with data so far
« Reply #117 on: November 08, 2007, 08:57:17 pm »
Quote from: krmilmont on November 07, 2007, 09:33:40 pm
my son was 16 and had 6cm
Is your son watching and waiting?
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Cheryl

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Re: Age of AN patients: UPDATE with data so far
« Reply #118 on: November 11, 2007, 03:53:46 pm »
age 44 2cm
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Victoriah1999

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Re: Age of AN patients: UPDATE with data so far
« Reply #119 on: November 12, 2007, 04:06:36 pm »
43, 3.5 CM AN
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